ArticleBMJ open2022
'It's the empathy'-defining a role for peer support among people living with chronic kidney disease: a qualitative study.
Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed, 21 citations in OpenAlex.
- The impact of "nurse-led education" vs. "nurse-led education plus peer support" on patients' decision for peritoneal dialysis treatment in chronic kidney disease patients.Therapeutic apheresis and dialysis : official peer-reviewed journal of the International Society for Apheresis, the Japanese Society for Apheresis, the Japanese Society for Dialysis Therapy · 2026Article
- Exploring the Experiences of Moderators From an Asynchronous Online Dementia Support Forum: Qualitative Interview Study.JMIR formative research · 2026Article
- An Integrated, Evidence-Guided Framework for Chronic Kidney Disease Self-Management: Behavioral Mechanisms, Implementation Strategies, and Real-World Application.Kidney & blood pressure research · 2026Review
- Article
- The role of social networks in supporting self-management in CKD: a narrative synthesis.BMC nephrology · 2025Review
- Article
- Peritoneal Dialysis in Young Adults: A Mixed-Methods Study.Kidney medicine · 2025Article
- The role of peer support in coping and adjustment to dialysis and transplantation: Study protocol.PloS one · 2025Article
- A Province-Wide Home Dialysis Program Review: Challenges, Strengths, and Future Strategies.Canadian journal of kidney health and disease · 2025Article
- Development of a patient-centered peer-mentoring program for kidney transplant patients: a qualitative study.Frontiers in psychology · 2025Article
- Identifying the barriers to kidney transplantation for patients in rural and remote areas: a scoping review.Journal of nephrology · 2024Article
- Feasibility of a Peer Mentor Training Program for Patients Receiving Hemodialysis: An Educational Program Evaluation.Kidney medicine · 2023Article
- Peer Support in Rheumatic Diseases: A Narrative Literature Review.Patient preference and adherence · 2023Review
- "Alive Day is the Day": A Qualitative Study of Experiences of Learned Helplessness in Maintenance Haemodialysis Patients.Risk management and healthcare policy · 2023Article
- Article
Corrections and comments
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Authors and funding
9 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesPersons with advanced chronic kidney disease (CKD) have unique support needs associated with managing a chronic yet often silent condition, complex treatment-related decisions and care transitions. The aim of this study was to explore perspectives on how peer support could address CKD support needs and augment care.
designThis study employed a qualitative descriptive methodology. Data were collected through focus groups (cofacilitated by patient partners) and semistructured interviews.
settingFour multidisciplinary CKD clinics across Southern Alberta, Canada.
participantsWe purposively sampled among adult patients with advanced, non-dialysis CKD and their caregivers, as well as trained peer mentors from The Kidney Foundation of Canada's Kidney Connect programme. ANALYSIS: Transcripts were coded in duplicate, and themes were generated inductively through a thematic analysis approach.
resultsWe conducted seven focus groups with a total of 39 patient and caregiver participants. Seven patients and caregivers who were unable to attend a focus group and 13 peer mentors participated in a telephone interview. Although patients and caregivers had limited awareness of peer support, participants acknowledged its central role in affirming their experiences and enabling confidence to live well with kidney disease. We identified four themes related to the anticipated role of peer support in addressing support needs for people with non-dialysis CKD: (1) creating connection; (2) preparing for uncertainty; (3) adapting to new realities; and (4) responsive peer support delivery. Aligning peer support access with patient readiness and existing CKD management supports can promote optimism, community and pragmatic adaptations to challenges.
conclusionsPatients, caregivers and peer mentors highlighted a unique value in the shared experiences of CKD peers to anticipate and manage disease-related challenges and confidently face a future living with kidney disease.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.