ArticleFamilies, systems & health : the journal of collaborative family healthcare2022
Family caregivers navigating the health care system: Evolving roles during the COVID-19 pandemic.
Article in Families, systems & health : the journal of collaborative family healthcare, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
5 citing papers in PubMed.
- Health Programmes for Older Adults Who Are the Primary Family Caregivers for Their Partners: A Scoping Review.Healthcare (Basel, Switzerland) · 2024Article
- Digital Health Readiness: Making Digital Health Care More Inclusive.JMIR mHealth and uHealth · 2024Article
- Review
- Family physicians' preferences for education to support family caregivers: a sequential mixed methods study.BMC primary care · 2024Article
- Changes in Site of Death Among Older Adults Without a COVID-19 Diagnosis During the COVID-19 Pandemic.Journal of general internal medicine · 2024Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
introductionThe COVID-19 pandemic has altered access to health care; it remains unclear how patients with chronic illness and disability and their family caregivers are adapting to these changes. In this study, we examined changes in family caregiver roles helping care recipients with chronic illness and disability navigate health care needs during the COVID-19 pandemic.
methodsFrom April 15 to May 27, 2020, we distributed online and telephone surveys to family caregiver members of a population-based regional research registry. Caregivers reported whether they were helping "more," "less," or the "same" with ten health care activities (e.g., filling prescriptions, attending medical appointments) now, compared to before the coronavirus pandemic. Using multivariable logistic regression models, we examined caregiver and caregiving context characteristics associated with helping more with 1 or more health care activities.
resultsOf 561 caregiver respondents, mean age was 59 years, 76% were women, and 56% co-resided with care recipients. Many caregivers (59%) reported increased help with 1 or more health care activities since the pandemic. Caregivers reported greater help getting medical supplies (31%) and attending care recipients' phone (21%) and video (16%) medical appointments. Women (OR 1.55; 95% CI 1.02-2.36) and caregivers assisting with short-term physical conditions were more likely to help more with 1 or more health care activities (OR 2.81; 95% CI 1.20-6.59). DISCUSSION: Family caregivers reported their responsibilities helping care recipients with chronic conditions and disabilities stay engaged with health care increased since the pandemic. Providers and health systems should consider targeted strategies to support caregivers helping vulnerable patients access necessary care. (PsycInfo Database Record (c) 2022 APA, all rights reserved).
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Registered trials
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