Evidence map›Paper›PMID 35548950›Full record

ArticleJournal of empirical research on human research ethics : JERHRE2022

Understanding of Critical Elements of Informed Consent in Genomic Research: A Case of a Paediatric HIV-TB Research Project in Uganda.

Francis Anyaka Amayoa, Frederick Nelson Nakwagala, John Barugahare, Ian Guyton Munabi, Erisa Sabakaki Mwaka

Abstract readCase Reports
In one paragraph

Article in Journal of empirical research on human research ethics : JERHRE, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Review
  2. Research ethics · 2025
    Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Francis Anyaka AmayoaCollege of Health Sciences, Makerere University, Uganda.
Frederick Nelson NakwagalaCollege of Health Sciences, Makerere University, Uganda.
John BarugahareCollege of Humanities and Social Sciences, Makerere University, Uganda.
Ian Guyton MunabiCollege of Health Sciences, Makerere University, Uganda.
Erisa Sabakaki MwakaCollege of Health Sciences, Makerere University, Uganda.ORCID 0000-0003-1672-9608

Funding

SUSTAIN: Advancing Makerere University Masters of Health Sciences in BioethicsR25TW009730 · FIC · MAKERERE UNIVERSITY COLLEGE OF HEALTH SCIENCES · PI SEWANKAMBO, NELSON K · 2014 to 2024
$2.4M
Ethical and social issues in informed consent processes in African genomic researchU01HG009810 · NHGRI · MAKERERE UNIVERSITY COLLEGE OF HEALTH SCIENCES · PI MWAKA, ERISA SABAKAKI · 2017 to 2019
$423k
FIC NIH HHS R25 TW009730NHGRI NIH HHS U01 HG009810
6 · The paper itself

Abstract

Several studies have reported inadequate comprehension of informed consent for genomic research. This study aimed to assess research participants' understanding of critical elements of informed consent for genomic research. A cross-sectional survey involving 123 parents/caregivers of children participating in a paediatric genomic TB/HIV study was conducted

Indexed as

ComprehensionHIV InfectionsChildCross-Sectional StudiesGenomicsHumansInformed ConsentUgandabiobankinggenomic researchinformed consentresearch participantsunderstanding

Identifiers

PMID35548950
PMCPMC9398965

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.