ArticlePaediatric & neonatal pain2022
Improving pain-related communication in children with autism spectrum disorder and intellectual disability.
Article in Paediatric & neonatal pain, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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Who cites it
19 citing papers in PubMed.
- Constipation outcomes in children with and without autism spectrum disorder: Insights from a tertiary motility service.Journal of pediatric gastroenterology and nutrition · 2026Article
- Describing the communication of autistic people during experiences of distress: A scoping review.Autism : the international journal of research and practice · 2026Article
- Acceptability and safety of a probiotic beverage supplementation (Bio-K +) and feasibility of the proposed protocol in children with a diagnosis of autism spectrum disorder.Journal of neurodevelopmental disorders · 2025Article
- Pain perception in autism. A study of sensory reactivity in children and adolescents with autism using quantitative sensory testing and psychophysiological correlates.Frontiers in neuroscience · 2025Article
- 'It wasn't the strategies on their own': Exploring caregivers' experiences of accessing services in the development of interventions for autistic people with intellectual disability.Autism : the international journal of research and practice · 2024Article
- Pain communication in children with autism spectrum disorder: A scoping review.Paediatric & neonatal pain · 2023Article
- Pain assessment in autism: updating the ethical and methodological challenges through a state-of-the-art review.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2023Review
- Predicting Problematic Behavior in Autism Spectrum Disorder Using Medical History and Environmental Data.Journal of personalized medicine · 2023Article
- Role of gastrointestinal health in managing children with autism spectrum disorder.World journal of clinical pediatrics · 2023Review
- Examining the latent structure and correlates of sensory reactivity in autism: a multi-site integrative data analysis by the autism sensory research consortium.Molecular autism · 2023Article
- Community-guided measurement-based care for autistic youth and adults receiving psychotherapy: A conceptual overview and pilot implementation study of MBC-AUT.Autism : the international journal of research and practice · 2023Review
- Pain research and children and adolescents with severe intellectual disability: ethical challenges and imperatives.The Lancet. Child & adolescent health · 2023Review
- Defining and Measuring Indices of Happiness and Unhappiness in Children Diagnosed with Autism Spectrum Disorder.Behavior analysis in practice · 2023Article
- Examining the Latent Structure and Correlates of Sensory Reactivity in Autism: A Multi-site Integrative Data Analysis by the Autism Sensory Research Consortium.Research square · 2023Article
- A multidimensional investigation of the relationship between skin-mediated somatosensory signals, emotion regulation and behavior problems in autistic children.Frontiers in neuroscience · 2023Article
- Pediatric Pain and Neurodevelopmental Disorders: Implications for Research and Practice in Behavior Analysis.Perspectives on behavior science · 2022Article
- Special issue on pain and intellectual and developmental disabilities.Paediatric & neonatal pain · 2022Article
- Improving pain-related communication in children with autism spectrum disorder and intellectual disability.Paediatric & neonatal pain · 2022Article
- Insights on dental care management and prevention in children with autism spectrum disorder (ASD). What is new?Frontiers in oral health · 2022Review
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The communication of pain in individuals with co-morbid Autism Spectrum Disorder and intellectual disability (ASD-ID) is largely unexplored. The communication deficits associated with ASD-ID can result in nonverbal behavior such as self-injurious behavior, aggression, irritability, and reduced activity as a means to communicate that pain is present. The objective of this study was to determine whether a behavioral-based educational intervention could increase the pain-related communication of children with ASD-ID who experience pain frequently. Specifically, the study aimed to determine if children with ASD-ID can label the location of their pain or quantify pain severity and request pain relief. The sample included three children with ASD-ID who experienced pain frequently. The intervention utilized educational materials and behavioral reinforcements and the intervention was conducted using a series of case studies. Pain was assessed daily by caregivers using the Non-Communicating Children's Pain Checklist-Postoperative (NCCPC-PV) and the ability of the individual to identify and express pain was recorded using the Wong Baker FACES Pain (WBFPS) Scale. Challenging behavior was recorded based on frequency count. The results indicated that all participants displayed the ability to independently respond to a question about how they were feeling by vocalizing the location of pain or indicating their level of pain on the WBFPS and requesting pain relief. The results suggest a role for behavioral-based educational interventions to promote communication of pain in people with ASD-ID.
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