Evidence map›Paper›PMID 35543902›Full record

ArticleEuropean geriatric medicine2022

Parkinson rehabilitation in nursing homes: a qualitative exploration of the experiences of patients and caregivers.

Hester Fidder, Joannina J Jaski, Eskeline Elbertse, Anouk M van Loon, Annelie A Monnier, Marike E de Boer, Aafke J de Groot

Registry-linked trialOpen access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in European geriatric medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06264037 ("The Experiences of Care Lived by People Admitted to Neurorehabilitation), which is not on this map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
0.6field-weighted citation impact, top 32% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06264037 unknown statusnot on this mapstarted 2023, after this paper: background citation

"The Experiences of Care Lived by People Admitted to Neurorehabilitation: a Qualitative Exploratory Study With a Phenomenological Approach

Typeobservational_patient_registrySponsorIRCCS San Camillo, Venezia, ItalyRan2023 to 2025Enrolled40ConditionsRehabilitation, Neurologic Disorder, Stroke, Parkinson DiseaseArmssemi structured interview
3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it, 6 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 1 institution in 1 country.

Hester FidderDepartment of Medicine for Older People, Amsterdam UMC, Location Vrije Universiteit Amsterdam, de Boelelaan 1117, Amsterdam, The Netherlands. h.fidder@amsterdamumc.nl.ORCID 0000-0002-9952-0422
Joannina J JaskiDepartment of Medicine for Older People, Amsterdam UMC, Location Vrije Universiteit Amsterdam, de Boelelaan 1117, Amsterdam, The Netherlands.
Eskeline ElbertseVivium Naarderheem Geriatric Rehabilitaton Center, Naarden, The Netherlands.
Anouk M van LoonDepartment of Medicine for Older People, Amsterdam UMC, Location Vrije Universiteit Amsterdam, de Boelelaan 1117, Amsterdam, The Netherlands.
Annelie A MonnierDepartment of Medicine for Older People, Amsterdam UMC, Location Vrije Universiteit Amsterdam, de Boelelaan 1117, Amsterdam, The Netherlands.
Marike E de BoerDepartment of Medicine for Older People, Amsterdam UMC, Location Vrije Universiteit Amsterdam, de Boelelaan 1117, Amsterdam, The Netherlands.
Aafke J de GrootDepartment of Medicine for Older People, Amsterdam UMC, Location Vrije Universiteit Amsterdam, de Boelelaan 1117, Amsterdam, The Netherlands.
GGD Amsterdam · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeWorldwide, an increasing number of people are diagnosed with atypical Parkinsonism or idiopathic Parkinson's disease (PD). Periods of acute functional decline, triggered by acute disease, are common. Rehabilitation is often necessary to restore functioning. Skilled nursing facilities (SNFs) in the Netherlands have developed evidence-based geriatric rehabilitation for Parkinson (GR-P) programs. However, data on the experiences and needs of patients and their caregivers are lacking. This study aims to address these, in order to propose recommendations for improvement.

methodsWe performed a qualitative study, using semi-structured interviews in two Dutch SNFs offering GR-P. Nine patients with PD and six informal caregivers were included. We subjected verbatim transcripts of 15 interviews to qualitative analysis.

resultsData saturation was reached after 15 interviews. Three overarching themes emerged: (1) autonomy, (2) sharing information and (3) contact with others. Loss of autonomy was linked to the underlying disease and the rehabilitation environment itself. Patients and caregivers felt overwhelmed by events before and during rehabilitation, expressing a need to receive information and discuss prior experiences. They considered communication between hospitals and SNFs to be poor. Patients did not always appreciate contact with peers. Both patients and caregivers appreciated empathic healthcare personnel with a firm knowledge on PD.

conclusionsAutonomy, sharing information and contact with others are central themes for patients and caregivers during GR-P in SNFs. We recommend actively exploring these three central themes with every patient and caregiver entering a GR-P program and offering staff continuing education on PD, in order to improve care.

Indexed as

CaregiversParkinson DiseaseAgedHumansNursing HomesQualitative ResearchSkilled Nursing FacilitiesNursing home, agedParkinson diseaseParkinson disease*/rehabilitationParkinsonian disordersQualitative researchRehabilitationSkilled nursing facility

Identifiers

PMID35543902
PMCPMC9092320
OpenAlexW4280497880

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.