Evidence map›Paper›PMID 35542753›Full record

ReviewNeuro-oncology advances

Proceedings of the Survivorship Care in Neuro-Oncology Workshop sponsored by the Comprehensive Oncology Network Evaluating Rare CNS Tumors (NCI-CONNECT).

Heather E Leeper, Emily Tonorezos, Deborah Mayer, Marie Bakitas, Susan Chang, Mary E Cooley, Shawn Hervey-Jumper, Christine Miaskowski, Paula Sherwood, Christina Tsien and 10 more

Open access · goldAbstract readReview
In one paragraph

Review in Neuro-oncology advances. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
0.9field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 6 citations in OpenAlex.

  1. Observational
  2. Neuro-oncology practice · 2025
    Article
  3. Article
  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors at 9 institutions in 1 country.

Heather E LeeperNeuro-Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health (NIH), Bethesda, Maryland, USA.ORCID https://orcid.org/0000-0003-2840-611X
Emily TonorezosOffice of Cancer Survivorship, Division of Cancer Control and Population Sciences, National Cancer Institute, National Institutes of Health (NIH), Bethesda, Maryland, USA.ORCID https://orcid.org/0000-0002-1185-5210
Deborah MayerSchool of Nursing and University of North Carolina Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, North Carolina, USA.
Marie BakitasSchool of Nursing, Division of Geriatrics, Gerontology, and Palliative Care, Department of Medicine, UAB Center for Palliative and Supportive Care, University of Alabama, Birmingham, Alabama, USA.
Susan ChangDivision of Neuro-Oncology, Department of Neurological Surgery, University of California, San Francisco, California, USA.
Mary E CooleyPhyllis F. Cantor Center in Nursing and Patient Care Services, Boston, Massachusetts, USA.
Shawn Hervey-JumperDepartment of Neurological Surgery, University of California, San Francisco, California, USA.
Christine MiaskowskiDepartments of Physiological Nursing and Anesthesia and Perioperative Care, Schools of Nursing and Medicine, University of California San Francisco, San Francisco, California, USA.
Paula SherwoodDepartment of Acute and Tertiary Care, School of Nursing, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.
Christina TsienDepartment of Radiation Oncology, Johns Hopkins Medicine, Baltimore, Maryland,USA.
Kimberly WallgrenCERN Foundation, A Program of the National Brain Tumor Society, Zionsville, Indiana, USA.
Nicole WillmarthAmerican Brain Tumor Association, Chicago, Illinois, USA.
David AronsNational Brain Tumor Society, Newton, Massachusetts, USA.
Alvina AcquayeNeuro-Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health (NIH), Bethesda, Maryland, USA.
Amanda L KingNeuro-Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health (NIH), Bethesda, Maryland, USA.
Marta Penas-PradoNeuro-Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health (NIH), Bethesda, Maryland, USA.
Elizabeth VeraNeuro-Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health (NIH), Bethesda, Maryland, USA.
Mark R GilbertNeuro-Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health (NIH), Bethesda, Maryland, USA.
Terri S ArmstrongNeuro-Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health (NIH), Bethesda, Maryland, USA.ORCID https://orcid.org/0000-0002-2414-0492
NCI-CONNECT Survivorship Care in Neuro-Oncology Workshop
National Institutes of Health · USUniversity of California, San Francisco · USJohns Hopkins University · USNational Brain Tumor Society · USOffice of Patient Care Services · USUniversity of Alabama · USUniversity of North Carolina at Chapel Hill · USUniversity of Pittsburgh · USAmerican Brain Tumor Association · US

Funding

Brain Tumor Clinical and Clinical Research Program (Clinical Support Services)ZIDBC011642 · NCI · DIVISION OF BASIC SCIENCES - NCI · PI OZER, BYRAM · 2015 to 2025
$23.4M
NRSA Training CoreTL1TR002318 · NCATS · UNIVERSITY OF WASHINGTON · PI Megan Moore · 2017 to 2026
$8.4M
Natural History and Specimen Banking for Patients with CNS TumorsZIABC011768 · NCI · DIVISION OF BASIC SCIENCES - NCI · PI ARMSTRONG, TERRI S. · 2017 to 2024
$6.7M
Rare Central Nervous System Cancers InitiativeZIABC011643 · NCI · DIVISION OF BASIC SCIENCES - NCI · PI GILBERT, MARK · 2015 to 2024
$4.2M
Office of Patient-Centered Outcomes Research (OPCORe)ZIABC012078 · NCI · DIVISION OF BASIC SCIENCES - NCI · PI ARMSTRONG, TERRI S. · 2022 to 2022
$465k
NCATS NIH HHS TL1 TR002318
6 · The paper itself

Abstract

Background: Survivorship for those living with primary CNS cancers begins at diagnosis, continues throughout a person's life, and includes caregivers. Opportunities and challenges exist to advance survivorship care for those living with primary CNS cancers that necessitate stakeholder involvement. Methods: In June 2021, NCI-CONNECT convened a two-day virtual workshop about survivorship care in neuro-oncology. Two expert panels provided key recommendations and five working groups considered critical questions to identify strengths, weaknesses, opportunities, and threats to the advancement of survivorship care and developed recommendations and action items. Results: The following action items emanated from the workshop: seek endorsement of meeting report from stakeholder organizations; address barriers in access to survivorship care and provider reimbursement; advance survivorship research through NIH and private grant support; develop a survivorship tool kit for providers, people living with primary CNS cancers and their caregivers; provide accessible educational content for neuro-oncology, neurology, and oncology community providers about survivorship care in neuro-oncology; and establish core competencies for survivorship care for neuro-oncology providers to be included in training and standardized exams. Conclusions: Action items aim to address access and reimbursement barriers, expand patient and provider education, develop core competencies, and support survivorship research through funding and other supports.

Indexed as

NCI-CONNECTpatient-centered careprimary central nervous system cancersurvivorshipsurvivorship care

Identifiers

PMID35542753
PMCPMC9079897
OpenAlexW4214663705

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.