ArticlePediatric cardiology2022
Parent-Provider Communication in Hospitalized Children with Advanced Heart Disease.
Article in Pediatric cardiology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
12 citing papers in PubMed, 19 citations in OpenAlex.
- Patient and family-centered concerns in pediatric cardiac surgery: a Middle Eastern perspective.Journal of cardiothoracic surgery · 2026Review
- Embedding Compassion and Communication Frameworks in Pediatric Cardiology.Pediatric cardiology · 2026Review
- A study of family care needs after pediatric congenital heart disease interventions based on the KANO model.BMC cardiovascular disorders · 2025Article
- Palliative care for the cardiothoracic transplant recipient.JHLT open · 2025Article
- A Pediatric Interprofessional Cardiac Intensive Care Unit Intervention: CICU Teams and Loved Ones Communicating (CICU TALC) is Feasible, Acceptable, and Improves Clinician Communication Behaviors in Family Meetings.Pediatric cardiology · 2025Article
- Growing Up With Congenital Heart Disease: A Qualitative Research Study of Parents' and Clinicians' Experiences and Perspectives.CJC pediatric and congenital heart disease · 2025Article
- Teaching pediatric cardiology fellows to communicate serious news: a pilot study.BMC medical education · 2024Article
- Facilitators and barriers to parent-child communication in pediatric palliative care: An integrative review.International journal of nursing sciences · 2024Review
- Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings.JAMA network open · 2024Article
- Parental communication satisfaction with the clinical team in the paediatric cardiac ICU.Cardiology in the young · 2024Article
- Parent communication with care teams and preparation for family meetings in the paediatric cardiac ICU: a qualitative study.Cardiology in the young · 2024Article
- Medical and End-of-Life Decision-Making Preferences in Adolescents and Young Adults with Advanced Heart Disease and Their Parents.JAMA network open · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 1 country.
Funding
Abstract
Communication between parents and providers of children with cardiac disease is essential to parental decision-making. This study explored how parents of hospitalized children with advanced heart disease perceived communication with their child's providers. We performed a prospective survey study of parents and physicians of children with advanced heart disease age 30 days to 19 years admitted to the hospital for > 7 days over a 1-year period at a single institution (n = 160 parent-provider pairs). Descriptive statistics were primarily used and Fisher exact tests and kappa statistics were used to assess agreement. All parents rated communication with their child's care team as excellent, very good, or good, but 56% of parents reported having received conflicting information. Parental perception of "too many" people giving them information was associated with overall poorer communication and less preparedness for decision-making. One-third (32%) of parents felt unprepared for decision-making, despite 88% feeling supported. Parents and physicians showed poor agreement with respect to overall adequacy of communication, receipt of conflicting information, and evaluation of the most effective way for parents to receive information. Interventions involving physician communication training and proactive assessment of parent communication preferences may be beneficial.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.