Evidence map›Paper›PMID 35537789›Full record

ArticleBMJ open2022

Support programmes for parents of children with intellectual disabilities: a scoping review protocol.

Janene Elizabeth Marais, Lisa Wegner, Thuli Mthembu

Abstract read
In one paragraph

Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Janene Elizabeth MaraisCentre for Interdisciplinary Studies of Children, Family and Society, University of the Western Cape Faculty of Community and Health Sciences, Cape Town, Western Cape, South Africa 3070033@myuwc.ac.za.ORCID 0000-0002-2145-6889
Lisa WegnerDepartment of Occupational Therapy, University of the Western Cape Faculty of Community and Health Sciences, Cape Town, South Africa.ORCID 0000-0001-9415-119X
Thuli MthembuDepartment of Occupational Therapy, University of the Western Cape Faculty of Community and Health Sciences, Cape Town, South Africa.ORCID 0000-0002-1140-7725

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionEvidence shows that parents of children with intellectual disabilities experience high levels of stress, emotional challenges and higher levels of depression. Despite these challenges, support for parents has tended to be peripheral in healthcare services of children. There is a lack of research attention given to support programmes for parents of children with intellectual disabilities despite the importance of parenting for the optimal development of children with intellectual disabilities. METHODS AND ANALYSIS: This review will follow the Joanna Briggs Institute scoping review methods manual. The search for relevant studies will be in Medline (EbscoHost), PsychARTICLES, PubMed, CINHAL, Academic Search Complete and SAePublications. Reference mining of full review studies will be conducted. A three-step search strategy will be used, including the use of information management software to manage the search results and to remove duplications. An independent reviewer will extract data using a data extraction tool. Furthermore, another reviewer will screen the included articles in conjunction with the results of the scoping review. The data extracted will be presented in a tabular format with a narrative summary related to the key findings. ETHICS AND DISSEMINATION: This scoping review has received ethical approval (BM20/4/26). A summary of the findings of the study will be published in a peer-reviewed journal. This scoping review will contribute to a better understanding of the support programmes available to parents of children with intellectual disabilities. This could be the first step in highlighting the gaps and future directions for the development and implementation of support programmes for parents of children with intellectual disabilities. REGISTRATION DETAILS: Marais JE, Wegner L, Mthembu T. Support programs for parents of children with intellectual disabilities: a scoping review [Internet].OSF; 2021. Available from:https://osf.io/en6cs/.

Indexed as

Intellectual DisabilityChildDelivery of Health CareHumansParentsResearch DesignScoping Reviews as TopicIntellectual disabilitiesparentssupport programs

Identifiers

PMID35537789
PMCPMC9092129

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.