Evidence map›Paper›PMID 35536409›Full record

ArticleEuropean journal of pediatrics2022

Are transition preparation consultations for adolescents with chronic conditions valuable? A mixed-methods study.

Hélène Mellerio, Agnès Dumas, Corinne Alberti, Sophie Guilmin-Crépon, Margaux Gastaldi, Loïc Passini, Céline Gabarro, Maxime Morsa, Enora Le Roux, Paul Jacquin

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In one paragraph

Article in European journal of pediatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
1.7field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it, 6 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 5 institutions in 1 country.

Hélène MellerioAD'venir, Adolescent Medicine Unit, Robert Debré Hospital, Assistance Publique-Hôpitaux de Paris, 48 bd Sérurier, 75019, Paris, France. helene.mellerio@inserm.fr.
Agnès DumasUniversité de Paris, ECEVE, UMR 1123, Inserm, 10 avenue de Verdun, 75010, Paris, France.
Corinne AlbertiUniversité de Paris, ECEVE, UMR 1123, Inserm, 10 avenue de Verdun, 75010, Paris, France.
Sophie Guilmin-CréponUniversité de Paris, ECEVE, UMR 1123, Inserm, 10 avenue de Verdun, 75010, Paris, France.
Margaux GastaldiAD'venir, Adolescent Medicine Unit, Robert Debré Hospital, Assistance Publique-Hôpitaux de Paris, 48 bd Sérurier, 75019, Paris, France.
Loïc PassiniAD'venir, Adolescent Medicine Unit, Robert Debré Hospital, Assistance Publique-Hôpitaux de Paris, 48 bd Sérurier, 75019, Paris, France.
Céline GabarroUniversité de Paris, ECEVE, UMR 1123, Inserm, 10 avenue de Verdun, 75010, Paris, France.
Maxime MorsaLaboratory of Education and Health Practices (EA3412), University Paris 13, 1 rue de Chablis, 93017, Bobigny, France.
Enora Le RouxUniversité de Paris, ECEVE, UMR 1123, Inserm, 10 avenue de Verdun, 75010, Paris, France.
Paul JacquinAD'venir, Adolescent Medicine Unit, Robert Debré Hospital, Assistance Publique-Hôpitaux de Paris, 48 bd Sérurier, 75019, Paris, France.
Hôpital Robert-Debré · FRÉpidémiologie Clinique, Évaluation Économique Appliquées aux Populations Vulnérables · FRAssistance Publique – Hôpitaux de Paris · FRUniversité Paris Cité · FRUniversité Sorbonne Paris Nord · FR

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Our objective was to assess the value of transition preparation consultations (TPC) offered by the AD'venir unit (R. Debré hospital, Paris) as a new service of transitional care, from the perspective of adolescents with chronic conditions (CCs) and their referring healthcare providers (RHCPs). TPCs included a face-to-face interview with pediatricians trained in adolescent medicine, exploring the adolescent's past (CC history), present (daily life, Treatment Burden Questionnaire, family/peer relationships, school, hobbies, sexuality, drugs), and future (global life project, transition, Good2Go questionnaire). The mixed-methods design included the following: a qualitative analysis within a multidisciplinary group (clinicians/sociologists/psychologist/public health researchers) of audio-recordings of TPCs (n = 27/girls = 56%/median age = 17.7 years) and phone interviews with adolescents 2 years post-TPC (n = 26); and a quantitative analysis of the Treatment Burden and Good2Go questionnaires and the benefits perceived by RHCPs (questionnaire 6 months post-TPC). TPCs were a form of training for adult care, adolescents meeting a practitioner alone often for the first time. Naming their CC was difficult. All complained of limitations experienced in social life (diet, fatigue, laboratory/medical appointments), but not the treatment itself; most adolescents willingly talked about sexuality. Adolescents' feelings about transition were various, with poor representations of adult healthcare. Transfer was frequently unplanned. After TPCs, RHCPs modified their practices. Transition in the 2 years post-TPC was usually successful. Conclusion What is Known: • In adolescents with chronic conditions, it is advocated to personalize transition care according to the clinical and social context, pointed out as potentially impacting. • Little is known about the most effective ways to prepare patients according to their needs. What is New: • Based on a global approach to adolescent health, transition preparation consultations are delivered by specially trained physicians. • They are a feasible and valuable way to highlight facilitators and barriers to successful transition and initiate the adolescents' own vision of their future.

Indexed as

Transitional CareTransition to Adult CareAdolescentAdultChronic DiseaseFemaleHumansReferral and ConsultationSurveys and QuestionnairesAdolescent healthChronic care modelChronic diseaseMultidisciplinarityQualitative analysisTransfer to adult healthcareTransitional care

Identifiers

PMID35536409
OpenAlexW4229442576

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.