Evidence map›Paper›PMID 35534084›Full record

ReviewBMJ open2022

Evaluation of freely available data profiling tools for health data research application: a functional evaluation review.

Ben Gordon, Clara Fennessy, Susheel Varma, Jake Barrett, Enez McCondochie, Trevor Heritage, Oenone Duroe, Richard Jeffery, Vishnu Rajamani, Kieran Earlam and 2 more

Abstract readReview
In one paragraph

Review in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Artificial Intelligence-Based Medical Data Mining.Journal of personalized medicine · 2022
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Ben GordonCentral Team, Health Data Research UK, London, UK.ORCID 0000-0002-3105-6774
Clara FennessyCentral Team, Health Data Research UK, London, UK.
Susheel VarmaCentral Team, Health Data Research UK, London, UK.ORCID 0000-0003-1687-2754
Jake BarrettCentral Team, Health Data Research UK, London, UK.ORCID 0000-0003-4758-6400
Enez McCondochieInspirata Ltd, Tampa, Florida, USA.
Trevor HeritageInspirata Ltd, Tampa, Florida, USA.
Oenone DuroeInspirata Ltd, Tampa, Florida, USA.
Richard JefferyInspirata Ltd, Tampa, Florida, USA.
Vishnu RajamaniInspirata Ltd, Tampa, Florida, USA.
Kieran EarlamCystic Fibrosis Trust, London, UK.
Victor BandaNeonatal Data Analysis Unit, Imperial College London Neonatal Medicine Research Group, London, UK.
Neil SebireCentral Team, Health Data Research UK, London, UK neil.sebire@hdruk.ac.uk.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo objectively evaluate freely available data profiling software tools using healthcare data.

designData profiling tools were evaluated for their capabilities using publicly available information and data sheets. From initial assessment, several underwent further detailed evaluation for application on healthcare data using a synthetic dataset of 1000 patients and associated data using a common health data model, and tools scored based on their functionality with this dataset.

settingImproving the quality of healthcare data for research use is a priority. Profiling tools can assist by evaluating datasets across a range of quality dimensions. Several freely available software packages with profiling capabilities are available but healthcare organisations often have limited data engineering capability and expertise.

participants28 profiling tools, 8 undergoing evaluation on synthetic dataset of 1000 patients.

resultsOf 28 potential profiling tools initially identified, 8 showed high potential for applicability with healthcare datasets based on available documentation, of which two performed consistently well for these purposes across multiple tasks including determination of completeness, consistency, uniqueness, validity, accuracy and provision of distribution metrics.

conclusionsNumerous freely available profiling tools are serviceable for potential use with health datasets, of which at least two demonstrated high performance across a range of technical data quality dimensions based on testing with synthetic health dataset and common data model. The appropriate tool choice depends on factors including underlying organisational infrastructure, level of data engineering and coding expertise, but there are freely available tools helping profile health datasets for research use and inform curation activity.

Indexed as

Delivery of Health CareSoftwareHumanshealth informaticsinformation managementinformation technology

Identifiers

PMID35534084
PMCPMC9086620

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.