Evidence map›Paper›PMID 35534065›Full record

ArticleBMJ open2022

Quantitative online survey of self-perceived knowledge and knowledge gaps of medicines research and development among Finnish general public.

Mirjami Tran Minh, Manu Tamminen, Jenni Tamminen-Sirkiä, Muntasir Mamun Majumder, Rubina Tabassum, Tuuli Lahti

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.5field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 3 citations in OpenAlex.

  1. Article
  2. Health information-seeking experience in people with head and neck neoplasms undergoing treatment: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
    Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Mirjami Tran MinhFaculty of Medicine, University of Helsinki, Helsinki, Finland mirjami.tran@helsinki.fi.ORCID 0000-0002-7996-7024
Manu TamminenFaculty of Science and Engineering, University of Turku, Turku, Finland.
Jenni Tamminen-SirkiäColores - the Finnish Colorectal Cancer Association, Helsinki, Finland.
Muntasir Mamun MajumderInstitute for Molecular Medicine Finland, HiLIFE, University of Helsinki, Helsinki, Finland.
Rubina TabassumInstitute for Molecular Medicine Finland, HiLIFE, University of Helsinki, Helsinki, Finland.
Tuuli LahtiFaculty of Medicine, University of Helsinki, Helsinki, Finland.
University of Helsinki · FICancer Society of Finland · FIUniversity of Turku · FI

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesThis study explored self-reported knowledge and interest to learn more about medicines research, development and health technology assessment among Finnish general public. It also aimed to define possible knowledge gaps and needs for public education regarding these topics.

designOnline survey with 503 participants. The questionnaire was originally developed as a part of the Needs Assessment Work Package of the European Patients' Academy on Therapeutic Innovation Project. The survey was carried out in Finland in 2019.

methodsThe survey was conducted as an online survey by Kantar TNS Gallup Forum online panel. The data were analysed by using the freely available programming language R. Relationships between the demographic characteristics (such as age, gender and education level) of respondents and their knowledge or interest in medicines research and development were determined using Pearson's χ

resultsOf the 503 respondents (age 16-64) only 12% reported having good or very good knowledge of medicines research and development in general. Regarding health technology assessment, pharmacoeconomics and regulation, the percentage of respondents reporting good or very good knowledge was as low as 8%. Respondents were most interested in learning more about predictive and personalised medicine (47%) and least interested in medicines regulation (30%) and pharmacoeconomics (31%).

conclusionsSelf-reported knowledge about medicines research and development and health technology assessment appears to be very low in Finland. Patient and public participation is recognised as an important and essential element in up-to-date medical research and assessment of new treatments. In order to participate as an active and equal partner in these processes, the public needs more information and education in these topics.

Indexed as

Biomedical ResearchTechnology Assessment, BiomedicalAdolescentAdultFinlandHumansMiddle AgedNeeds AssessmentSurveys and QuestionnairesYoung AdultHealth literacyHealth technology assessment (HTA)Medicines Research and Development (R&D)Patient and public involvement (PPI)

Identifiers

PMID35534065
PMCPMC9086635
OpenAlexW4280518905

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.