Evidence map›Paper›PMID 35533323›Full record

ArticleInteractive journal of medical research2022

Ethical, Legal, and Sociocultural Issues in the Use of Mobile Technologies and Call Detail Records Data for Public Health in the East African Region: Scoping Review.

Juliet Nabbuye Sekandi, Kenya Murray, Corinne Berryman, Paula Davis-Olwell, Caroline Hurst, Robert Kakaire, Noah Kiwanuka, Christopher C Whalen, Erisa Sabakaki Mwaka

Abstract readScoping Review
In one paragraph

Article in Interactive journal of medical research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Trial
  2. Article
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  4. Review
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  6. Review
  7. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Juliet Nabbuye SekandiGlobal Health Institute, College of Public Health, University of Georgia, Athens, GA, United States.ORCID https://orcid.org/0000-0003-2430-1396
Kenya MurrayGlobal Health Institute, College of Public Health, University of Georgia, Athens, GA, United States.ORCID https://orcid.org/0000-0002-7710-3994
Corinne BerrymanDepartment of Health Promotion and Behavior, College of Public Health, University of Georgia, Athens, GA, United States.ORCID https://orcid.org/0000-0002-7443-1036
Paula Davis-OlwellGlobal Health Institute, College of Public Health, University of Georgia, Athens, GA, United States.ORCID https://orcid.org/0000-0002-0876-8044
Caroline HurstDepartment of Health Promotion and Behavior, College of Public Health, University of Georgia, Athens, GA, United States.ORCID https://orcid.org/0000-0003-4721-8245
Robert KakaireGlobal Health Institute, College of Public Health, University of Georgia, Athens, GA, United States.ORCID https://orcid.org/0000-0003-1588-4075
Noah KiwanukaDepartment of Epidemiology and Biostatistics, School of Public Health, Makerere University, Kampala, Uganda.ORCID https://orcid.org/0000-0003-2471-9290
Christopher C WhalenGlobal Health Institute, College of Public Health, University of Georgia, Athens, GA, United States.ORCID https://orcid.org/0000-0002-8081-0665
Erisa Sabakaki MwakaDepartment of Anatomy, School of Biomedical Sciences, College of Health Sciences, Makerere University, Kampala, Uganda.ORCID https://orcid.org/0000-0003-1672-9608

Funding

Emory/Georgia TB Research Advancement Center (TRAC)P30AI168386 · NIAID · EMORY UNIVERSITY · PI Neel Rajnikant Gandhi, Jyothi Rengarajan · 2022 to 2026
$5.8M
Community Transmission of Tuberculosis Urban AfricaR01AI093856 · NIAID · UNIVERSITY OF GEORGIA · PI WHALEN, CHRISTOPHER C. · 2012 to 2021
$5.7M
NIAID NIH HHS P30 AI168386NIAID NIH HHS R01 AI093856
6 · The paper itself

Abstract

backgroundThe exponential scale and pace of real-time data generated from mobile phones present opportunities for new insights and challenges across multiple sectors, including health care delivery and public health research. However, little attention has been given to the new ethical, social, and legal concerns related to using these mobile technologies and the data they generate in Africa.

objectiveThe objective of this scoping review was to explore the ethical and related concerns that arise from the use of data from call detail records and mobile technology interventions for public health in the context of East Africa.

methodsWe searched the PubMed database for published studies describing ethical challenges while using mobile technologies and related data in public health research between 2000 and 2020. A predefined search strategy was used as inclusion criteria with search terms such as "East Africa," "mHealth," "mobile phone data," "public health," "ethics," or "privacy." We screened studies using prespecified eligibility criteria through a two-stage process by two independent reviewers. Studies were included if they were (1) related to mobile technology use and health, (2) published in English from 2000 to 2020, (3) available in full text, and (4) conducted in the East African region. We excluded articles that (1) were conference proceedings, (2) studies presenting an abstract only, (3) systematic and literature reviews, (4) research protocols, and (5) reports of mobile technology in animal subjects. We followed the five stages of a published framework for scoping reviews recommended by Arksey and O'Malley. Data extracted included title, publication year, target population, geographic region, setting, and relevance to mobile health (mHealth) and ethics. Additionally, we used the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) Extension for Scoping Reviews checklist to guide the presentation of this scoping review. The rationale for focusing on the five countries in East Africa was their geographic proximity, which lends itself to similarities in technology infrastructure development.

resultsOf the 94 studies identified from PubMed, 33 met the review inclusion criteria for the final scoping review. The 33 articles retained in the final scoping review represent studies conducted in three out of five East African countries: 14 (42%) from Uganda, 13 (39%) from Kenya, and 5 (16%) from Tanzania. Three main categories of concerns related to the use of mHealth technologies and mobile phone data can be conceptualized as (1) ethical issues (adequate informed consent, privacy and confidentiality, data security and protection), (2) sociocultural issues, and (3) regulatory/legal issues.

conclusionsThis scoping review identified major cross-cutting ethical, regulatory, and sociocultural concerns related to using data from mobile technologies in the East African region. A comprehensive framework that accounts for the critical concerns raised would be valuable for guiding the safe use of mobile technology data for public health research purposes.

Indexed as

Africacall detail recordsEast AfricaethicsmHealthmobile appsmobile healthprivacypublic health

Identifiers

PMID35533323
PMCPMC9204580

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.