SynthesisHealth expectations : an international journal of public participation in health care and health policy2022
Adapting a codesign process with young people to prioritize outcomes for a systematic review of interventions to prevent self-harm and suicide.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Debate: Where to next for universal school-based mental health interventions? Can research led by young people shape universal solutions for mental health and suicide prevention in school settings?Child and adolescent mental health · 2025Pooled it
- Prevention of self-harm and suicide in young people up to the age of 25 in education settings.The Cochrane database of systematic reviews · 2024Pooled it
- Adapting a codesign process with young people to prioritize outcomes for a systematic review of interventions to prevent self-harm and suicide.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Trial
- Early Evaluation of IMAGINATOR 2.0 Intervention Targeting Self-Harm in Young People: Single-Arm Feasibility Trial.JMIR formative research · 2026Trial
- Working with a youth mental health apprenticeship scheme to coproduce evidence synthesis: The youth mental health evidence synthesis hub.JCPP advances · 2026Article
- Developing Digital Platforms to Help Older Adults Stay Physically and Socially Active: Co-Design Study to Develop a Toolkit and Evaluate Its Impact.JMIR aging · 2026Article
- Recovery from suicidality in youth aged 6 to 25: a review of 50 quantitative and qualitative studies.European child & adolescent psychiatry · 2026Review
- Seeing both sides of the story: creating patient/provider persona dyads for use in mental health service co-design.Research involvement and engagement · 2026Article
- An adaptive, youth-centred co-design methodology: place-based co-design centring youth and community participation.Research involvement and engagement · 2026Article
- Youth Engagement in School Mental Health Teaming: Structure, Processes, and Outcomes of a Youth Leadership Academy to Promote Emotional Well-Being in Schools.Behavioral sciences (Basel, Switzerland) · 2025Article
- Collaborating With Young People: Identifying the Barriers and Facilitators in Co-Designed Research.Health expectations : an international journal of public participation in health care and health policy · 2025Review
- The use of personas to involve consumers in healthcare co-design: a scoping review.BMC health services research · 2025Article
- Bridging the gaps: advancing preconception nutrition in South Asia through evidence, policy, and action.The Lancet regional health. Southeast Asia · 2025Review
- Codesign is the zeitgeist of our time, but what do we mean by this? A scoping review of the concept of codesign in collaborative research with young people.Health research policy and systems · 2025Article
- Exploring Support Preferences for Young Women Who Self-Harm: A Qualitative Study.International journal of environmental research and public health · 2025Article
- Practitioner Review: Treatments for young people who self-harm - challenges and recommendations for research and clinical practice.Journal of child psychology and psychiatry, and allied disciplines · 2025Review
- "I am there just to get on with it": a qualitative study on the labour of the patient and public involvement workforce.Health research policy and systems · 2024Article
- Article
- Is a smartphone application (BlueIce) acceptable and safe for university students who self-harm: an open study.BMJ open · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundResearch and clinical outcomes that matter to people with lived experience can significantly differ from those outcomes studied by researchers. To inform a future Cochrane review of suicide and self-harm prevention interventions, we aimed to work with young people with relevant lived experience to agree on priority outcomes.
designFour participatory codesign workshops were completed across two sites (New Zealand, United Kingdom) with 28 young people in total. We iteratively adapted the methods over the course of the study.
results'Improved coping' and 'safer/more accepting environment to disclose' were the final top-rated outcomes. 'Reduction of self-harm' was considered a low priority as it could be misleading, stigmatizing and was considered a secondary consequence of other improvements. In contrast to typical research outcomes, young people emphasized the diversity of experience, the dynamic nature of improvement and holistic and asset-based framing. Methodologically, dialogue using design materials (personas) to thematically explore outcomes was effective in overcoming the initial challenge of disparate quantitative ratings. DISCUSSION: The results will directly inform the development of a Cochrane review, enabling identification of whether and how outcomes of most importance to young people are measured in trials. Rather than producing discrete measurable outcomes that could be easily added to the systematic review, the young people challenged the academic conceptualization of outcomes, with implications for future evidence synthesis and intervention research, and for future codesign. PATIENT OR PUBLIC CONTRIBUTION: Young people with lived experience were codesigners of the outcomes, and their feedback informed iterative changes to the study methods.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.