Evidence map›Paper›PMID 35507405›Full record

ArticleJMIR aging2022

Shared Access to Patient Portals for Older Adults: Implications for Privacy and Digital Health Equity.

Jennifer L Wolff, Vadim Dukhanin, Julia G Burgdorf, Catherine M DesRoches

Open access · goldAbstract read
In one paragraph

Article in JMIR aging, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed
9.5field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 35 citations in OpenAlex.

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  12. Care Partner Perspectives on the Use of a Patient Portal Intervention to Promote Care Partner Identification in Dementia Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
    Article
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  18. Use of the patient portal among older adults with diagnosed dementia and their care partners.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023
    Observational
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Jennifer L WolffJohns Hopkins Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD, United States.ORCID https://orcid.org/0000-0002-7898-3903
Vadim DukhaninJohns Hopkins Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD, United States.ORCID https://orcid.org/0000-0002-8685-0027
Julia G BurgdorfCenter for Home Care Policy & Research, Visiting Nurse Service of New York, New York, NY, United States.ORCID https://orcid.org/0000-0002-3356-1897
Catherine M DesRochesOpenNotes, Beth Israel Deaconess Medical Center, Boston, MA, United States.ORCID https://orcid.org/0000-0001-5373-855X
Johns Hopkins University · USBeth Israel Deaconess Medical Center · USVNS Health · US

Funding

Consumer Health Information Technology to Engage and Support ADRD Caregivers: Research Program to Address ADRD Implementation MIlestone 13.IR35AG072310 · NIA · JOHNS HOPKINS UNIVERSITY · PI WOLFF, JENNIFER L. · 2021 to 2025
$4.3M
NIA NIH HHS R35 AG072310
6 · The paper itself

Abstract

Growing reliance on the patient portal as a mainstream modality in health system interactions necessitates prioritizing digital health equity through systems-level strategies that acknowledge and support all persons. Older adults with physical, cognitive, sensory, and socioeconomic vulnerabilities often rely on the involvement of family and friends in managing their health, but the role of these care partners in health information technology is largely undefined and poorly understood. This viewpoint article discusses challenges and opportunities of systematic engagement of care partners through shared access to the patient portal that have been amplified in the context of the COVID-19 outbreak and recent implementation of federal information blocking rules to promote information transparency alongside broader shifts toward care delivery innovation and population aging. We describe implementation considerations and the promise of granular, role-based privacy controls in addressing the nuanced and dynamic nature of individual information sharing preferences and fostering person- and family-centered care delivery.

Indexed as

agingcare deliverycare partnerscognitionelderlyelderly careelectronic health recordhealth equityhealth informaticshealth serviceshealth systemolder adultspatient portalproxy

Identifiers

PMID35507405
PMCPMC9118085
OpenAlexW4225436571

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.