ArticleAlzheimer's & dementia (New York, N. Y.)2022
Including ethnic minorities in dementia research: Recommendations from a scoping review.
Article in Alzheimer's & dementia (New York, N. Y.), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 42 papers, 4 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
42 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- The Experience of People With Dementia in Accessing and Engaging in Talking Therapies for Mental Health Difficulties: A Systematic Review and Thematic Meta-Synthesis.Dementia (London, England) · 2026Pooled it
- Toward compassionate communication: a rapid review on facilitating the dementia disclosure process.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Pooled it
- Recruitment, retention and reporting of variables related to ethnic diversity in randomised controlled trials: an umbrella review.BMJ open · 2024Pooled it
- Attitudes and Preferences Towards Screening for Dementia with a Focus on Ethnic Minority and Low Socio-Economic Groups: A Systematic Review of Research Studies Written in the English Language.Journal of Alzheimer's disease : JAD · 2024Pooled it
- Hospitalization experience of ethno-racial older adults with dementia and caregivers: scoping review.The Gerontologist · 2026Article
- The Association BetweenNeurology. Genetics · 2026Article
- Article
- Translation and interpreting services must be considered across the lifecycle of clinical trials.Trials · 2026Article
- Barriers and facilitators to recruitment, engagement, and retention of underrepresented populations in dementia prevention research: a scoping review.The journal of prevention of Alzheimer's disease · 2026Article
- Bridging Research, Policy, and Practice: Advancing Evidence-Informed Approaches for Dementia Care and Prevention: an expert review by the Health Policy Professional Interest Area from ISTAART.Alzheimer's & dementia. Behavior & socioeconomics of aging · 2026Article
- Pathways to participation - a scoping review outlining barriers and enablers to participation in dementia research.The journal of prevention of Alzheimer's disease · 2026Article
- Cultural adaptations made to existing implementation science theories, models, frameworks, or outcomes: a scoping review.Translational behavioral medicine · 2026Article
- Dementia and cognitive decline in Black Brazilians: a narrative review.Frontiers in human neuroscience · 2026Review
- Variation in real world dementia risk profiles according to demographic characteristics in 6171 adults drawn from the Australian CogDrisk website.BMC public health · 2025Article
- Minoritised ethnic groups and modifiable dementia risk: a scoping review of UK-based evidence.Journal of epidemiology and community health · 2025Article
- Lewy Body Dementia Research in Latin America: A Scoping Review.Movement disorders clinical practice · 2025Article
- Co-Producing and Evaluating a Culturally Inclusive Dementia Education Initiative: A Multimethod Study Protocol.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- iSupport for rare dementias: a mixed-methods non-randomised feasibility study of an online self-help programme for carers.Pilot and feasibility studies · 2025Article
- A multiperspective investigation of the underrepresentation of minoritized ethnic participants in dementia research and proposed strategies to improve inclusive recruitment practices.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- 'It opens up a whole new world for everybody': how carers of people with dementia view the online empowered conversations communication course.Aging & mental health · 2025Article
Corrections and comments
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Authors and funding
17 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Introduction: Ethnicity influences dementia etiology, prognosis, and treatment, while culture shapes help-seeking and care. Despite increasing population diversity in high-income settlement countries, ethnic minorities remain underrepresented in dementia research. We investigated approaches to enhance the recruitment, and consistent collection and analysis of variables relevant to, ethnic minorities in dementia studies to make recommendations for consistent practice in dementia research. Methods: We did a scoping review, searching Embase, PsycINFO, Medline, CENTRAL, and CINAHL between January 1, 2010 and January 7, 2020. Dementia clinical and cohort studies that actively recruited ethnic minorities in high-income countries were included. A steering group of experts developed criteria through which high-quality studies were identified. Results: Sixty-six articles were retrieved (51 observational; 15 experimental). Use of interpreters and translators (n = 17) was the most common method to facilitate participant recruitment. Race and ethnicity (n = 59) were the most common variables collected, followed by information on native language (n = 14), country of birth (n = 9), and length of time in country of settlement (n = 8). Thirty-three studies translated or used a culturally validated instrument. Twenty-three articles conducted subgroup analyses based on ethnicity. Six high-quality studies facilitated inclusion through community engagement, collected information on multiple aspects of ethnic diversity, and adjusted/substratified to analyze the impact of ethnicity on dementia. Discussion: We make recommendations for consistent recruitment, collection, and reporting of variables relating to ethnic and cultural diversity in dementia research.
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