Evidence map›Paper›PMID 35503650›Full record

ArticleJMIR aging2022

Delivering Personalized Recommendations to Support Caregivers of People Living With Dementia: Mixed Methods Study.

Jinhee Cha, Colleen M Peterson, Ashley N Millenbah, Katie Louwagie, Zachary G Baker, Ayush Shah, Christine J Jensen, Joseph E Gaugler

Abstract read
In one paragraph

Article in JMIR aging, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Jinhee ChaMedical School and School of Public Health, University of Minnesota, Minneapolis, MN, United States.ORCID https://orcid.org/0000-0003-4129-2401
Colleen M PetersonUniversity of Michigan Transportation Research Institute, University of Michigan, Ann Arbor, MI, United States.ORCID https://orcid.org/0000-0002-0875-3440
Ashley N MillenbahDivision of Health Policy and Management, School of Public Health, University of Minnesota, Minneapolis, MN, United States.ORCID https://orcid.org/0000-0001-6033-0974
Katie LouwagieDivision of Health Policy and Management, School of Public Health, University of Minnesota, Minneapolis, MN, United States.ORCID https://orcid.org/0000-0002-4933-0145
Zachary G BakerDivision of Health Policy and Management, School of Public Health, University of Minnesota, Minneapolis, MN, United States.ORCID https://orcid.org/0000-0001-5345-7643
Ayush ShahDivision of Health Policy and Management, School of Public Health, University of Minnesota, Minneapolis, MN, United States.ORCID https://orcid.org/0000-0002-5346-4314
Christine J JensenRiverside Center for Excellence in Aging and Lifelong Health, Williamsburg, VA, United States.ORCID https://orcid.org/0000-0003-2085-9122
Joseph E GauglerDivision of Health Policy and Management, School of Public Health, University of Minnesota, Minneapolis, MN, United States.ORCID https://orcid.org/0000-0003-4797-485X

Funding

Care to Plan: Preliminary Efficacy of a Tailored Resource for Family Members of Persons with DementiaR21AG060419 · NIA · UNIVERSITY OF MINNESOTA · PI GAUGLER, JOSEPH E. · 2019 to 2020
$388k
Addressing the Needs of Key Subgroups of Caregivers of Persons with Dementia After Loss Using Self-Determination Theory: A Mixed Methods ApproachK99AG073463 · NIA · UNIVERSITY OF MINNESOTA · PI BAKER, ZACHARY G · 2021 to 2022
$180k
NIA NIH HHS K99 AG073463NIA NIH HHS R21 AG060419
6 · The paper itself

Abstract

backgroundEstimates suggest that 6.2 million Americans aged ≥65 years are living with Alzheimer dementia in 2021, and by 2060, this number could more than double to 13.8 million. As a result, public health officials anticipate a greater need for caregivers of persons with Alzheimer disease or related dementia and support resources for both people living with dementia and their caregivers. Despite the growing need for dementia caregiver support services, there is a lack of consensus regarding how to tailor these services to best meet the heterogeneous needs of individual caregivers. To fill this gap, Care to Plan (CtP), a web-based tool for caregivers of people living with dementia, was developed to provide tailored support recommendations to dementia caregivers.

objectiveThe aim of this study is to formally explore the feasibility, acceptability, and utility of CtP for 20 family members of people living with dementia within a health system over a 1-month time period using a mixed methods parallel convergent design.

methodsA moderately sized health system in the mid-Atlantic region was selected as the site for CtP implementation, where 20 caregivers who were family members of people living with dementia were enrolled. The web-based CtP tool was used by caregivers and facilitated by a health care professional (ie, a senior care navigator [SCN]). Caregivers were given a 21-item review checklist to assess barriers and facilitators associated with reviewing CtP with an SCN. Following the 21-item review checklist, semistructured telephone interviews, which included 18 open-ended questions, focused on the facilitators of and barriers to CtP implementation and recommendations for future implementation.

resultsQuantitative results suggested that 85% (17/20) of caregivers indicated that CtP was helpful and 90% (18/20) would recommend CtP to someone in a similar situation. The qualitative analysis identified 4 themes regarding facilitators of and barriers to implementation: caregiver factors, SCN factors, CtP tool system factors, and recommendations and resources factors.

conclusionsCtP was found to be not only feasible but also a valuable tool for caregivers seeking resources for themselves and their people living with dementia. Long-term evaluation findings aim to generate results on how CtP can be integrated into care plans for caregivers and how SCNs can provide additional support for caregivers of people living with dementia over an extended period.

Indexed as

AlzheimercaregiverscaregivingCOVID-19dementiaintervention

Identifiers

PMID35503650
PMCPMC9067568

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.