Evidence map›Paper›PMID 35488270›Full record

Trial reportBMC palliative care2022

Acceptability and feasibility of a pilot randomized controlled trial of Narrative e-Writing Intervention (NeW-I) for parent-caregivers of children with chronic life-threatening illnesses in Singapore.

Oindrila Dutta, Geraldine Tan-Ho, Xinyi Casuarine Low, Toh Hsiang Benny Tan, Sashikumar Ganapathy, Josip Car, Ringo Moon-Ho Ho, Chun Yan Miao, Andy Hau Yan Ho

Registry-linked trialOpen access · goldAbstract readRandomized Controlled Trial
In one paragraph

Trial report in BMC palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03684382 (Development and Evaluation of a Narrative E-Writing Intervention), which is not on this map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
1.0field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03684382 naunknown statusnot on this map

Development and Evaluation of a Narrative E-Writing Intervention (NeW-I) for Parents of Children With Chronic Life-Threatening Illness

TypeinterventionalSponsorNanyang Technological UniversityRan2019 to 2020Enrolled66ConditionsParent of Child With Chronic Life-threatening IllnessArmsNeW-I group
3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 7 citations in OpenAlex.

  1. Article
  2. Hope in Pediatric Palliative Care: A Systematic Review.Children (Basel, Switzerland) · 2026
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 2 institutions in 1 country.

Oindrila DuttaSchool of Social Sciences; School of Computer Science and Engineering; Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore, Singapore.ORCID http://orcid.org/0000-0002-2925-2477
Geraldine Tan-HoSchool of Social Sciences; School of Computer Science and Engineering; Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore, Singapore.ORCID http://orcid.org/0000-0001-9888-8922
Xinyi Casuarine LowDuke-NUS Medical School, Singapore, Singapore.ORCID https://orcid.org/0000-0002-6394-0118
Toh Hsiang Benny TanSchool of Social Sciences; School of Computer Science and Engineering; Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore, Singapore.ORCID https://orcid.org/0000-0002-8724-9399
Sashikumar GanapathyClub Rainbow, Singapore, Singapore.ORCID http://orcid.org/0000-0001-5051-4542
Josip CarSchool of Social Sciences; School of Computer Science and Engineering; Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore, Singapore.ORCID https://orcid.org/0000-0001-8969-371X
Ringo Moon-Ho HoSchool of Social Sciences; School of Computer Science and Engineering; Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore, Singapore.ORCID https://orcid.org/0000-0001-9021-5141
Chun Yan MiaoSchool of Social Sciences; School of Computer Science and Engineering; Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore, Singapore.ORCID https://orcid.org/0000-0002-0300-3448
Andy Hau Yan HoSchool of Social Sciences; School of Computer Science and Engineering; Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore, Singapore. andyhyho@ntu.edu.sg.ORCID https://orcid.org/0000-0003-0373-7043
Nanyang Technological University · SGDuke-NUS Medical School · SG

Funding

Ministry of Education - Singapore 2017-T1-001-034Temasek Foundation M4062472.SS0
6 · The paper itself

Abstract

backgroundNarrative e-Writing Intervention (NeW-I) is a novel psycho-socio-spiritual intervention which aims to bridge gaps in paediatric palliative care by providing anticipatory grief support to parent-caregivers who are looking after their child with a chronic life-threatening illness in Singapore. This is done via a therapist-facilitated smartphone app that focuses on strengths and meaning derived from parents' caregiving journey. NeW-I is empirically informed by an international systematic review and a Singapore-based qualitative inquiry on the lived experience of parental bereavement and supported by anticipatory grief interventions literature for improving the holistic well-being for parent-caregivers of seriously ill children. NeW-I is implemented in Singapore as an open-label two-armed randomized controlled trial comprising an intervention and control group.

methodsThis study examined the acceptability (via analysis of participants' post-intervention qualitative feedback and responses to a post-intervention evaluation survey) and feasibility (via records and memos of therapists' experience of delivering the intervention) of NeW-I among 26 intervention participants drawn from the larger trial.

resultsFramework analysis of participants' post-intervention feedback revealed four themes, namely: (i) Meaningful opportunity for reflection, (ii) Congruity with parent-caregivers' needs, (iii) Compatibility of online narrative writing and (iv) Sustainability and enhancement recommendations. The post-intervention evaluation survey showed that participants were overall satisfied with their NeW-I experience with a large number of participants acknowledging that NeW-I had improved their spiritual well-being, hopefulness about the future and perception of social support that was available to them, as well as lessened their feelings of sadness and depression, caregiver burden and fear and anxiety about their child's illness. The research team found it feasible to deliver the intervention in the current setting.

conclusionNeW-I is an innovative e-health tool that could immeasurably value-add to paediatric palliative care services for Asian families in Singapore and around the world.

trial registrationClinicalTrials.gov, ID: NCT03684382 , Verified: September 2018.

Indexed as

CaregiversParentsChildFeasibility StudiesHumansPilot ProjectsSingaporeWritingCyber-CounsellingEnd-of-Life CareNarrative TherapyPaediatric Palliative CarePsychotherapyRandomized Controlled Trial

Identifiers

PMID35488270
PMCPMC9052453
OpenAlexW4225136814

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.