ArticleBMJ open2022
Impact of endometriosis on women's life decisions and goal attainment: a cross-sectional survey of members of an online patient community.
Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 32 citations in OpenAlex.
- Is endometriosis associated with poor sleep quality? A meta-analysis.Women's health (London, England)Pooled it
- The impact of endometriosis on educational and professional pathways: a cross-sectional online study.BMC psychology · 2026Article
- How Women with Endometriosis Use Social Media for Support and Self-Management: An Analysis of Reddit Content.International journal of environmental research and public health · 2025Article
- Article
- The Impact of Gynecological Pathologies on Patients' Quality of Life from Menarche to Menopause-Literature Review.Journal of clinical medicine · 2025Review
- In pain and lonely? A longitudinal study examining the associations between menstrual pain, physical functioning and loneliness.British journal of health psychology · 2025Article
- WERF Endometriosis Phenome and Biobanking Harmonisation Project for Experimental Models in Endometriosis Research (EPHect-EM-Pain): methods to assess pain behaviour in rodent models of endometriosis.Molecular human reproduction · 2025Review
- Understanding Deep Endometriosis: From Molecular to Neuropsychiatry Dimension.International journal of molecular sciences · 2025Review
- Psychotherapy with somatosensory stimulation as a complementary treatment for women with endometriosis-associated pain - a qualitative study.BMC complementary medicine and therapies · 2024Article
- Review
- Her, His, and their journey with endometriosis: a qualitative study.Frontiers in global women's health · 2024Article
- The Role of Selected Dietary Factors in the Development and Course of Endometriosis.Nutrients · 2023Review
- New concepts on the etiology of endometriosis.The journal of obstetrics and gynaecology research · 2023Article
- Perception and Comfort with Endometriosis Management Among OB/GYN Residents.International journal of women's health · 2023Article
- Persistent dysregulation of genes in the development of endometriosis.Annals of translational medicine · 2022Article
Corrections and comments
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Authors and funding
10 authors at 5 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo examine women's perceptions of endometriosis-associated disease burden and its impact on life decisions and goal attainment.
designAn anonymous online survey was distributed in October 2018 through the social media network MyEndometriosisTeam.com.
participantsWomen aged 19 years and older living in several English-speaking countries who self-identified as having endometriosis. OUTCOME MEASURES: Patients' perspectives on how endometriosis has affected their work, education, relationships, overall life decisions and attainment of goals. Subanalyses were performed for women who identified as 'less positive about the future' (LPAF) or had 'not reached their full potential' (NRFP) due to endometriosis.
results743 women completed the survey. Women reported high levels of pain when pain was at its worst (mean score, 8.9 on severity scale of 0 (no pain) to 10 (worst imaginable pain)) and most (56%, n=415) experienced pain daily. Women reported other negative experiences attributed to endometriosis, including emergency department visits (66%, n=485), multiple surgeries (55%, n=406) and prescription treatments for symptoms of endometriosis (72%, n=529). Women indicated that they believed endometriosis had a negative impact on their educational and professional achievements, social lives/relationships and overall physical health. Most women 'somewhat agreed'/'strongly agreed' that endometriosis caused them to lose time in life (81%, n=601), feel LPAF (80%, n=589) and feel they had NRFP (75%, n=556). Women who identified as LPAF or NRFP generally reported more negative experiences than those who were non-LPAF or non-NRFP.
conclusionsWomen who completed this survey reported pain and negative experiences related to endometriosis that were perceived to negatively impact major life-course decisions and attainment of goals. Greater practitioner awareness of the impact that endometriosis has on a woman's life course and the importance of meaningful dialogue with patients may be important for improving long-term management of the disease and help identify women who are most vulnerable.
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