Evidence map›Paper›PMID 35475309›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2022

Question prompt lists and endorsement of question-asking support patients to get the information they seek-A longitudinal qualitative study.

Marguerite Tracy, Julie Ayre, Olivia Mac, Tessa Copp, Emerita Lyndal Trevena, Heather Shepherd

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Review
  2. Evaluating the Health Literacy Characteristics of Question Prompt Lists on National Cancer Institute Designated Cancer Center Websites.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
  3. Co-Design of Maternity Discussion Cards for Aboriginal and Torres Strait Islander Women.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  4. Article
  5. Article
  6. Article
  7. A Decision Aid for Patients Considering Surgery for Sciatica: Codesign and User-Testing With Patients and Clinicians.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  8. Optimizing the design and implementation of question prompt lists to support person-centred care: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  9. Patients' Perspectives on the Use of a Newly Developed "Patients' Guide for Doctor's Visit": DocVISITguide.International journal of environmental research and public health · 2023
    Article
  10. Question prompt lists and endorsement of question-asking support patients to get the information they seek-A longitudinal qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Marguerite TracyASK-GP Centre for Resarch Excellence, Sydney School of Public Health, The University of Sydney, New South Wales, Australia.ORCID 0000-0003-1247-6412
Julie AyreASK-GP Centre for Resarch Excellence, Sydney School of Public Health, The University of Sydney, New South Wales, Australia.ORCID 0000-0002-5279-5189
Olivia MacASK-GP Centre for Resarch Excellence, Sydney School of Public Health, The University of Sydney, New South Wales, Australia.ORCID 0000-0002-6760-4779
Tessa CoppASK-GP Centre for Resarch Excellence, Sydney School of Public Health, The University of Sydney, New South Wales, Australia.ORCID 0000-0001-7801-5884
Emerita Lyndal TrevenaASK-GP Centre for Resarch Excellence, Sydney School of Public Health, The University of Sydney, New South Wales, Australia.ORCID 0000-0003-1419-1832
Heather ShepherdSusan Wakil Sydney Nursing School, The University of Sydney, New South Wales, Australia.ORCID 0000-0002-3350-1325

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionQuestion prompt lists (QPLs) have been found to support patients to ask questions and improve the information they receive from doctors. However, some QPL tools, which have been available online for almost 15 years, have little published data on their impact in real-world settings. This study's aim was to understand patients' attitudes and experiences accessing health information and to assess the impact of introducing two generic QPLs over 3 months.

methodsA longitudinal qualitative study consisting of three semi-structured interviews over a three-month period was conducted with 31 purposively selected participants, adults ≥18 years, recruited online and through social media. Participants were introduced to two different QPLs currently available online ('Question Builder'; 'AskShareKnow'). Inductive thematic analysis of a total of 92 semi-structured telephone interviews was conducted during May-November 2020.

resultsThree main themes are described. (1) Participants described barriers and facilitators to accessing health information: navigating a complex health system; difficulty asking questions of their healthcare professionals and that they value doctors with good communication skills. (2) QPLs helped some participants recognize the role of question-asking in consultations, made them feel more empowered and helped them prepare and prioritize. (3) Participants wanted QPLs to be easier to use, be accessible when needed and that question-asking and QPLs should be normalized in medical consultations.

conclusionsWell-designed and easily accessible QPLs can empower people to ask questions and be more involved in decisions about their health care. Endorsement of question-asking in consultations by healthcare professionals and providing QPL tools at the point of contact with health services will be key to realizing the potential of QPLs. PATIENT OR PUBLIC CONTRIBUTION: This study was completed in conjunction with a reference group consisting of a consumer representative, representatives from the Australian Commission on Safety and Quality in Health Care, Healthdirect Australia Ltd., and the research team.

Indexed as

CommunicationPhysician-Patient RelationsSurveys and QuestionnairesAdultAustraliaHumansPatient ParticipationQualitative Researchdoctor endorsementhealth literacyhealth services accessibilitypatient participationquestion prompt listsshared decision-making

Identifiers

PMID35475309
PMCPMC9327807

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.