ArticleBMC pregnancy and childbirth2022
Barriers to and facilitators of effective communication in perinatal care: a qualitative study of the experiences of birthing people with sensory, intellectual, and/or developmental disabilities.
Article in BMC pregnancy and childbirth, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 29 citations in OpenAlex.
- Prevalence of Mental Disorders in Parents With Intellectual Disabilities: A Systematic Review.Journal of intellectual disability research : JIDR · 2026Pooled it
- Reducing preventable adverse events in obstetrics by improving interprofessional communication skills - Results of an intervention study.BMC pregnancy and childbirth · 2023Trial
- Combating Medical Violence Against Deaf, DeafBlind, Blind and Partially Sighted Communities: A Community-Based Research Agenda for Canada and Abroad.Healthcare (Basel, Switzerland) · 2026Article
- The Meaning of Autism Friendly in Hospital Settings: A Scoping Review of the Autism Community's Perspectives.Journal of autism and developmental disorders · 2026Article
- Equity and Inclusion: A Review of NHS and HSC Online Information for Women in the Early Phase of Labour.Healthcare (Basel, Switzerland) · 2026Article
- Barriers to perinatal healthcare for women with disabilities: A Narrative Review with a Systematic Search and Regional Focus on Kashmir.Dialogues in health · 2026Review
- Communication barriers in perinatal care for autistic women: A qualitative study using the hermeneutic-dialectic circle in Brazil.PloS one · 2026Article
- Patient Disability Status and the Use of Stigmatizing Language in Clinical Notes During Hospital Admission for Birth.Journal of obstetric, gynecologic, and neonatal nursing : JOGNN · 2025Article
- Learning from the Implementation of Disability-Inclusive Maternity Care: A Scoping Review.Healthcare (Basel, Switzerland) · 2025Review
- A qualitative meta-synthesis of the perinatal healthcare experiences of people with disability.Disability and health journal · 2025Review
- Disability justice and collective access to labour and delivery care: a qualitative study.BMC pregnancy and childbirth · 2024Article
- Review
- Unmet needs, limited access: A qualitative study of postpartum health care experiences of people with disabilities.Journal of advanced nursing · 2023Article
- Depressive symptoms during the perinatal period by disability status: Findings from the United States Pregnancy Risk Assessment Monitoring System.Journal of advanced nursing · 2023Article
- Maternal Health Experiences of Black Deaf and Hard of Hearing Women in the United States.Women's health issues : official publication of the Jacobs Institute of Women's HealthArticle
Corrections and comments
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Authors and funding
7 authors at 5 institutions in 2 countries.
Funding
Abstract
backgroundEffective provider-patient communication is a key element of quality health care, including perinatal care. What constitutes "effective communication" in perinatal care may vary according to the population seeking care, such as women with intellectual and developmental disabilities (IDD) and sensory disabilities. Research broadly indicates that communication issues are among the barriers to perinatal care experienced by women with disabilities. However, few studies have explicitly explored their communication experiences in this context. The purpose of this study was to understand the communication experiences of birthing people with IDD and/or sensory disabilities in perinatal care.
methodsWe conducted semi-structured interviews with 17 people with IDD (e.g., autism, cognitive delay) and/or sensory disabilities (e.g., d/Deaf, blind) in Ontario, Canada, who had recently given birth, to explore barriers to and facilitators of effective communication in perinatal care. A combination of deductive and inductive thematic analysis guided data analysis.
resultsWe found that birthing people with IDD and/or sensory disabilities encountered multiple barriers to effective communication in perinatal care, namely, lack of policies and guidelines, lack of provider experience, lack of provider effort, as well as ableism and provider assumptions. Facilitators included knowledgeable, aware, and supportive providers; access to communication aids and services; tailoring information to patients' disability-related communication needs; empathic communication; and, communication among providers.
conclusionUnmet communication needs may contribute to negative health and social outcomes for birthing people with disabilities and their newborns. Accessibility policy implementation and practice change are needed to meet the communication needs of people with IDD and/or sensory disabilities in perinatal care to ensure positive experiences and outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.