Evidence map›Paper›PMID 35468746›Full record

ArticleBMC cancer2022

Development of a questionnaire to evaluate female fertility care in pediatric oncology, a TREL initiative.

M E Madeleine van der Perk, Eglė Stukaitė-Ruibienė, Žana Bumbulienė, Goda Elizabeta Vaitkevičienė, Annelies M E Bos, Marry M van den Heuvel-Eibrink, Jelena Rascon

Open access · goldAbstract read
In one paragraph

Article in BMC cancer, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.6field-weighted citation impact, top 33% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 5 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 2 countries.

M E Madeleine van der Perk *Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands. m.e.m.vanderperk@prinsesmaximacentrum.nl.
Eglė Stukaitė-Ruibienė *Vilnius University, Faculty of Medicine, Vilnius, Lithuania.
Žana BumbulienėVilnius University, Faculty of Medicine, Vilnius, Lithuania.
Goda Elizabeta VaitkevičienėVilnius University, Faculty of Medicine, Vilnius, Lithuania.
Annelies M E BosUniversity Medical Center Utrecht, Reproductive Medicine and Gynaecology, Utrecht, The Netherlands.
Marry M van den Heuvel-Eibrink *Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.
Jelena Rascon *Vilnius University, Faculty of Medicine, Vilnius, Lithuania.
Vilnius University · LTPrincess Máxima Center · NLUniversity Medical Center Utrecht · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCurrently the five-year survival of childhood cancer is up to 80% due to improved treatment modalities. However, the majority of childhood cancer survivors develop late effects including infertility. Survivors describe infertility as an important and life-altering late effect. Fertility preservation options are becoming available to pre- and postpubertal patients diagnosed with childhood cancer and fertility care is now an important aspect in cancer treatment. The use of fertility preservation options depends on the quality of counseling on this important and delicate issue. The aim of this manuscript is to present a questionnaire to determine the impact of fertility counseling in patients suffering from childhood cancer, to improve fertility care and evaluate what patients and their parents or guardians consider good fertility care.

methodsWithin the framework of the EU-Horizon 2020 TREL project, a fertility care evaluation questionnaire used in the Netherlands was made applicable for international multi-center use. The questionnaire to be used at least also in Lithuania, incorporates patients' views on fertility care to further improve the quality of fertility care and counseling. Results evaluate fertility care and will be used to improve current fertility care in a national specialized pediatric oncology center in the Netherlands and a pediatric oncology center in Lithuania.

conclusionAn oncofertility-care-evaluation questionnaire has been developed for pediatric oncology patients and their families specifically. Results of this questionnaire may contribute to enhancement of fertility care in pediatric oncology in wider settings and thus improve quality of life of childhood cancer patients and survivors.

Indexed as

Fertility PreservationInfertilityNeoplasmsChildFemaleHumansQuality of LifeSurveys and QuestionnairesFertility careLate effectsPediatric cancerQuestionnaireReproductive health

Identifiers

PMID35468746
PMCPMC9036799
OpenAlexW4224326161

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.