ArticleChildren (Basel, Switzerland)2022
The Needs of Adolescents and Young Adults with Chronic Illness: Results of a Quality Improvement Survey.
Article in Children (Basel, Switzerland), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
29 citing papers in PubMed, 1 synthesis or guideline pooled it, 51 citations in OpenAlex.
- Values and preferences of patients with inborn errors of immunity and their caregivers: a systematic review.Frontiers in immunology · 2026Pooled it
- Quality domains in home-based pediatric hospice and palliative care: adolescent and young adult perspectives.BMC palliative care · 2026Article
- Designing Emotion-Integrated Visualizations for Kidney Function Self-Management: User-Centered Design Study With Youth Transplant Recipients and Caregivers.Journal of medical Internet research · 2026Article
- Article
- What are the symptoms and concerns of young adults living with life-limiting conditions and how well are they captured by patient reported outcome measures? A mixed-methods systematic review and framework synthesis.Palliative medicine · 2026Review
- Self-management for youth and young adults with childhood-onset chronic conditions: A scoping review of parent and caregiver perspectives.Health care transitions · 2026Article
- Health services' responses to transitioning adolescents to adult HIV care in South Africa.African journal of primary health care & family medicine · 2025Article
- Transition readiness among Chinese adolescents with chronic diseases: the promoting role of self-efficacy and willingness to engage in healthcare.BMC health services research · 2025Article
- Article
- Attrition From Pediatric Interdisciplinary Chronic Pain Clinics: Utilizing the "Paediatric Electronic Persistent Pain Outcomes Collaboration (PaedePPOC) Database".The Clinical journal of pain · 2025Article
- Preferences of South African Adolescents Living with HIV in the Western Cape Province Regarding the Use of Digital Technology for Self-Management.International journal of environmental research and public health · 2025Article
- "I-We-I": Visualizing Adolescents' Perceptions and Apprehension to Transition to Adult HIV Care at a Supportive Transition Facility in the Cape Town Metropole, South Africa.Tropical medicine and infectious disease · 2025Article
- Early Young Adult Death Underscores the Need for Adolescent and Young Adult Transition Programs in Neurofibromatosis Type 1.The Journal of pediatrics · 2025Article
- Dietary and complementary oral supplements for the management of chronic diseases in children: a systematic review.Frontiers in pediatrics · 2025Review
- Peer-support needs and experiences of young adults with chronic conditions: A mixed methods study.Health care transitions · 2025Article
- Article
- Exploring the Influence of a Diabetes Specialty Outpatient Clinic on Adolescents With Type 1 Diabetes in Barbados: A Qualitative Study.Pediatric diabetes · 2025Article
- Mapping the Transition of Adolescents to Adult HIV Care: A Mixed-Methods Perspective from the Cape Town Metropole, South Africa.Tropical medicine and infectious disease · 2024Article
- Anxiety and care experiences in adolescents with chronic health conditions: an international, longitudinal study across the transfer of care.BMJ paediatrics open · 2024Article
- Asking those who know their needs best: A framework for active engagement and involvement of childhood cancer survivors and parents in the process of psychosocial research-A workshop report.Cancer reports (Hoboken, N.J.) · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Adolescent and young adults (AYAs) with chronic illnesses cope with complex issues that require unique psychological support and healthcare services to reduce psychosocial difficulties, improve disease management, and facilitate positive transitions to adult care. Engaging patients and caregivers can help providers understand the specific needs of this population and identify the perceived areas of support. The purpose of this quality improvement initiative is to assess the needs of AYAs with chronic medical conditions at a large government research hospital. Eighty-nine AYA patients (age = 23.5 years; range 13-34) with neurofibromatosis type 1, cancer, primary immunodeficiencies, or sickle cell disease, and a sample of caregivers (
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.