Evidence map›Paper›PMID 35441919›Full record

ArticleJournal of autism and developmental disorders2023

Self-reported needs of caregivers of people with Autism Spectrum Disorder.

Claire Colombet, Céline Alcaraz, Xavier de la Tribonnière, Maxime Morsa, Cécile Rattaz, Amaria Baghdadli

Abstract read
PubMed Publisher
In one paragraph

Article in Journal of autism and developmental disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.5field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 9 citations in OpenAlex.

  1. Article
  2. Close Relationships Despite the Challenges: Sibling Relationships and Autism.Journal of autism and developmental disorders · 2025
    Article
  3. Article
  4. Article
  5. Perceived Support Needs of School-Aged Young People on the Autism Spectrum and Their Caregivers.International journal of environmental research and public health · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 5 institutions in 1 country.

Claire ColombetCentre de Ressource Autisme Languedoc-Roussillon et Centre d'excellence sur l'autisme et les troubles neuro-développementaux, CHU Montpellier, Montpellier, France. rech-clinique-autisme@chu-montpellier.fr.
Céline AlcarazCentre de Ressource Autisme Languedoc-Roussillon et Centre d'excellence sur l'autisme et les troubles neuro-développementaux, CHU Montpellier, Montpellier, France.
Xavier de la TribonnièreUnité transversale d'éducation du patient (UTEP), CHU Montpellier, Montpellier, France.
Maxime MorsaLaboratoire Education et Pratiques de Santé (UR3412), Université Paris Sorbonne Paris Nord, Bobigny, France.
Cécile RattazCentre de Ressource Autisme Languedoc-Roussillon et Centre d'excellence sur l'autisme et les troubles neuro-développementaux, CHU Montpellier, Montpellier, France.
Amaria BaghdadliCentre de Ressource Autisme Languedoc-Roussillon et Centre d'excellence sur l'autisme et les troubles neuro-développementaux, CHU Montpellier, Montpellier, France.ORCID http://orcid.org/0000-0002-5679-7544
Conseil Régional du Languedoc-Roussillon · FRCentre Occitanie-Montpellier · FRInserm · FRUniversité de Montpellier · FRUniversité Sorbonne Paris Nord · FR

Funding

délégation interministérielle pour l'autisme (dia) and direction générale de la santé (dgs) délégation interministérielle pour l'autisme (dia) and direction générale de la santé (dgs)
6 · The paper itself

Abstract

objectivesAutism spectrum disorder (ASD) has a major impact on caregivers. We aimed to describe caregivers' perceptions concerning their level of knowledge about ASD and their needs to better adapt education and training programs.

methodsThis was a descriptive cross-sectional study conducted through a declarative and self-administered survey in France.

results1,013 individuals answered the questionnaire in 2020. If most caregivers felt they had sufficient knowledge about ASD, they still expressed a high level of needs regarding acquiring knowledge, identifying available resources, and finding social/emotional support.

conclusionsThis study highlights the high level of needs of caregivers and their expectations of improving their knowledge and skills to help the person with ASD.

Indexed as

Autism Spectrum DisorderCaregiversCross-Sectional StudiesHumansSelf ReportSurveys and QuestionnairesAutism spectrum disorderCaregiversNeedsPatient educationSelf-careSelf-management

Identifiers

PMID35441919
OpenAlexW4224294158

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.