Evidence map›Paper›PMID 35438337›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2022

Stakeholder engagement and participation in the design, delivery, and dissemination of the ostomy self-management telehealth (OSMT) program.

Christopher Wendel, Virginia Sun, Nancy Tallman, Christie Simons, Peter Yonsetto, Frank Passero, Deborah Donahue, Dan Fry, Roger Iverson, Pamela Pitcher and 11 more

Abstract read
PubMed Publisher
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Recruitment strategies for a multisite telehealth trial for rural cancer survivors with ostomies.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Trial
  3. Trial
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Christopher WendelDepartment of Medicine, Arizona Center On Aging, University of Arizona, 1501 N. Campbell, PO Box 245027, Tucson, AZ, 85724-5027, USA. cwendel@arizona.edu.ORCID http://orcid.org/0000-0002-2383-5612
Virginia SunDivision of Nursing Research and Education, Department of Population Sciences, City of Hope, Duarte, CA, USA.
Nancy TallmanUnaffiliated (Wound, Ostomy, and Continence Nurse), Tucson, AZ, USA.
Christie SimonsUnaffiliated (Wound, Ostomy, and Continence Nurse), Tucson, AZ, USA.
Peter YonsettoArizona Telemedicine Program, University of Arizona, Tucson, AZ, USA.
Frank PasseroUnaffiliated (Patient Partner), Philadelphia, PA, USA.
Deborah DonahueUnaffiliated (Patient Partner), Philadelphia, PA, USA.
Dan FryUnaffiliated (Patient Partner), Philadelphia, PA, USA.
Roger IversonUnaffiliated (Patient Partner), Tucson, AZ, USA.
Pamela PitcherUnaffiliated (Patient Partner), New Haven, CT, USA.
Jonathan FriedlaenderUnaffiliated (Patient Partner), New Haven, CT, USA.
Lyn MacDougallUnaffiliated (Patient Partner), Duarte, CA, USA.
Joshua HensonUnaffiliated (Patient Partner), Duarte, CA, USA.
Ruth C McCorkleSchool of Nursing, Yale University, New Haven, CT, USA.
Elizabeth ErcolanoSchool of Nursing, Yale University, New Haven, CT, USA.
Zuleyha CidavCenter for Mental Health, University of Pennsylvania, Philadelphia, PA, USA.
Michael J HolcombArizona Telemedicine Program, University of Arizona, Tucson, AZ, USA.
Ronald S WeinsteinArizona Telemedicine Program, University of Arizona, Tucson, AZ, USA.
Mark C HornbrookCenter for Health Research, Kaiser Permanente, Portland, OR, USA.
Marcia GrantDivision of Nursing Research and Education, Department of Population Sciences, City of Hope, Duarte, CA, USA.
Robert S KrouseDepartment of Surgery, University of Pennsylvania, Philadelphia, PA, USA.

Funding

Patient-Centered Outcomes Research Institute CDR-1507-31690
6 · The paper itself

Abstract

purposeStakeholder engagement is increasingly integrated into clinical research processes. We conducted a mixed methods analysis to describe stakeholders' (peer ostomates, ostomy nurses, telehealth engineers) perceptions of their engagement and participation in a multisite, randomized trial of a telehealth-delivered curriculum for cancer survivors with ostomies.

methodsStakeholder notes were analyzed using narrative analysis. We constructed a 15-item survey that assessed the following areas: adherence to stakeholder engagement principles, engagement/influence throughout the study process, impact on perceived well-being, and satisfaction. Stakeholders were invited to complete the survey anonymously. Quantitative survey data were tabulated through summary statistics.

resultsAcross intervention sessions, an average of 7.7 ± 1.4 stakeholders attended and 2.6 ± 1.4 submitted a note per session. The survey response rate was 73% (11/15). Stakeholders reported high agreement that the study adhered to engagement principles (91% reciprocal relationships, 100% co-learning, partnership, and transparency/honesty/trust). They felt highly engaged (18% moderate, 73% great deal) and that they had influence on study initiation (27% moderate, 55% great deal), intervention delivery (9% moderate, 82% great deal), fidelity assessment (18% moderate, 73% great deal), analysis and interpretation (55% moderate, 27% great deal), and dissemination (45% moderate, 45% great deal). They reported high overall satisfaction with roles (91% great deal), believed the program was helpful for participants (91%), and that serving on study team benefited their own well-being (100%).

conclusionsOur strategy of stakeholder inclusion led to high engagement, input, satisfaction, and belief in success of program, which could be mirrored in other trials.

Indexed as

Cancer SurvivorsOstomySelf-ManagementTelemedicineHumansStakeholder ParticipationOstomySelf-managementStakeholdersTelehealth

Identifiers

PMID35438337

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.