ArticleRheumatology (Oxford, England)2022
Exploring discordance between Health Literacy Questionnaire scores of people with RMDs and assessment by treating health professionals.
Article in Rheumatology (Oxford, England), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed, 11 citations in OpenAlex.
- Pharmacists' recognition, support strategies, and perceived challenges in caring for patients with limited medication literacy in Saudi Arabia: A quasi-experimental study.Exploratory research in clinical and social pharmacy · 2026Article
- Diversity of health literacy strengths and challenges among migrant patients with inflammatory rheumatic diseases: a qualitative exploration.Rheumatology advances in practice · 2026Article
- Perspectives and experiences of parents of children with juvenile dermatomyositis: a semi-structured interview study.Pediatric rheumatology online journal · 2025Article
- Artificial intelligence in patient education: evaluating large language models for understanding rheumatology literature.Frontiers in digital health · 2025Article
- Health literacy of rheumatology patients in three clinics in Australia and its association with sociodemographic and clinical characteristics.Rheumatology advances in practice · 2024Article
- Article
- Assessment Tools for Measuring Health Literacy and Digital Health Literacy in a Hospital Setting: A Scoping Review.Healthcare (Basel, Switzerland) · 2023Article
- Development and validation of a Systemic Sclerosis Health Literacy Scale.Frontiers in public health · 2023Article
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Authors and funding
13 authors at 8 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesWe studied discordance between health literacy of people with rheumatic and musculoskeletal diseases (RMDs) and assessment of health literacy by their treating health professionals, and explored whether discordance is associated with the patients' socioeconomic background.
methodsPatients with RA, spondyloarthritis (SpA) or gout from three Dutch outpatient rheumatology clinics completed the nine-domain Health Literacy Questionnaire (HLQ). Treating health professionals assessed their patients on each HLQ domain. Discordance per domain was defined as a ≥2-point difference on a 0-10 scale (except if both scores were below three or above seven), leading to three categories: 'negative discordance' (i.e. professional scored lower), 'probably the same' or 'positive discordance' (i.e. professional scored higher). We used multivariable multilevel multinomial regression models with patients clustered by health professionals to test associations with socioeconomic factors (age, gender, education level, migration background, employment, disability for work, living alone).
resultsWe observed considerable discordance (21-40% of patients) across HLQ domains. Most discordance occurred for 'Critically appraising information' (40.5%, domain 5). Comparatively, positive discordance occurred more frequently. Negative discordance was more frequently and strongly associated with socioeconomic factors, specifically lower education level and non-Western migration background (for five HLQ domains). Associations between socioeconomic factors and positive discordance were less consistent.
conclusionFrequent discordance between patients' scores and professionals' estimations indicates there may be hidden challenges in communication and care, which differ between socioeconomic groups. Successfully addressing patients' health literacy needs cannot solely depend on health professionals' estimations but will require measurement and dialogue. VIDEO ABSTRACT: A video abstract of this article can be found at https://www.youtube.com/watch?v=ggnB1rATdQ4.
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