ArticleLearning health systems2022
Building responsive governance for learning networks.
Article in Learning health systems, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 6 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
6 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Implementation strategies and outcome measures for advancing learning health systems: a mixed methods systematic review.Health research policy and systems · 2023Pooled it
- Evaluating health organization readiness for implementing a learning health system: a scoping review.Health research policy and systems · 2025Article
- Clinical quality registries: Establishing the socio-technical infrastructure for learning health systems.Learning health systems · 2025Article
- Barriers to optimizing inflammatory bowel disease care in the United States.Therapeutic advances in gastroenterology · 2023Review
- Erratum: Building responsive governance for learning networks.Learning health systems · 2022Article
- Building responsive governance for learning networks.Learning health systems · 2022Article
Corrections and comments
- Erratum issued
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Introduction: This article describes a strategic governance review of Improve Care Now (ICN), a learning health network focused on improving clinical outcomes for adolescents with Crohn's disease and ulcerative colitis (IBD). ICN is organized around an "enhanced" patient registry and collaborative community of patients, parents, clinicians, and researchers. Methods: The engagement included a review of ICN's governing documents, interviews and facilitated sessions with ICN stakeholders, and desk review to identify governance best practices that applied to ICN. Results: The review made recommendations to establish a plan to transition ICN's governance to its community, build pipelines for future network leaders, escalate uncommon data-sharing decisions, and design safe online spaces for community members. Conclusions: Governance can provide the scaffolding to help networks grow: organizing structures that support consistent, well documented, and inclusive decision-making.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.