ArticleJournal of patient experience2022
Missing Persons Alert: Finding the Lost "Person" in Patient-Oriented Research.
Article in Journal of patient experience, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
4 citing papers in PubMed.
- Compensating patient partners on health research teams: a qualitative descriptive study of barriers, facilitators, and implications for equity, diversity, and inclusion in Canadian patient-oriented research.Research involvement and engagement · 2026Article
- From 'publish or perish' to 'publish with purpose': perspectives from young adults with lived and living experience on transforming academic publishing in patient-oriented research.Research involvement and engagement · 2024Article
- Primus Inter PARES: First among equals-practical strategies for young adult PAtient RESearch partners (PARES) by young adult PARES.Research involvement and engagement · 2024Article
- Exploring the Experience of Student Researchers and Family Partners Working as an Interdisciplinary Team.SAGE open nursingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
After a decade of attempts at patient-oriented research, this article seeks to advance the approach, making individuals and communities active partners in health research. Patient-oriented research remains inconsistently implemented, tokenistic, and met with resistance-largely due to the system in which it was conceived and practiced. Patients remain bound by object-oriented medical cosmologies, thus reaffirming the hierarchical system underpinned by professional dominance. Until health research and researchers develop an awareness of the subtle injustices legitimized by the current approach, patient-oriented research will not actualize its mandate. This article does not challenge the healthcare system as that is beyond its scope; instead, it aims to develop further the "what" and "how" of public involvement in health research through the supplement of participatory research methodologies. In effect, setting the early foundations for transformation and encouraging a transition to a more just and equitable healthcare and research ecosystem.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.