Evidence map›Paper›PMID 35433020›Full record

ReviewDigital health

Ethical issues of collecting, storing, and analyzing geo-referenced tweets for mental health research.

Marta Fadda, Martin Sykora, Suzanne Elayan, Milo A Puhan, John A Naslund, Stephen J Mooney, Emiliano Albanese, Rosalba Morese, Oliver Gruebner

Abstract readReview
In one paragraph

Review in Digital health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Social media mining under the COVID-19 context: Progress, challenges, and opportunities.International journal of applied earth observation and geoinformation : ITC journal · 2022
    Article
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Marta FaddaInstitute of Public Health, Faculty of Biomedical Sciences della Svizzera italiana, Lugano, Switzerland.ORCID https://orcid.org/0000-0003-3537-0346
Martin SykoraCentre for Information Management, Loughborough University, Loughborough, UK.ORCID https://orcid.org/0000-0002-5363-5857
Suzanne ElayanCentre for Information Management, Loughborough University, Loughborough, UK.
Milo A PuhanEpidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland.
John A NaslundDepartment of Global Health and Social Medicine, Harvard Medical School, Boston, USA.
Stephen J MooneyUniversity of Washington, Seattle, USA.
Emiliano AlbaneseInstitute of Public Health, Faculty of Biomedical Sciences della Svizzera italiana, Lugano, Switzerland.
Rosalba MoreseInstitute of Public Health, Faculty of Biomedical Sciences della Svizzera italiana, Lugano, Switzerland.
Oliver GruebnerEpidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Spatial approaches to epidemiological research with big social media data provide tremendous opportunities to study the relationship between the socio-ecological context where these data are generated and health indicators of interest. Such research poses a number of ethical challenges, particularly in relation to issues such as privacy, informed consent, data security, and storage. While these issues have received considerable attention by researchers in relation to research for physical health purposes in the past 10 years, there have been few efforts to consider the ethical challenges of conducting mental health research, particularly with geo-referenced social media data. The aim of this article is to identify strengths and limitations of current recommendations to address the specific ethical issues of geo-referenced tweets for mental health research. We contribute to the ongoing debate on the ethical implications of big data research and also provide recommendations to researchers and stakeholders alike on how to tackle them, with a specific focus on the use of geo-referenced data for mental health research purposes. With increasing awareness of data privacy and confidentiality issues (even for non-spatial social media data) it becomes crucial to establish professional standards of conduct so that compliance with ethical standards of conducting research with health-related social media data can be prioritized and easily assessed.

Indexed as

big datadigital epidemiologydigital health geographyEthicsgeovisual analyticsmental healthsentiment analysissocial mediaspatial epidemiology

Identifiers

PMID35433020
PMCPMC9008807

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.