Evidence map›Paper›PMID 35428190›Full record

ArticleBMC cardiovascular disorders2022

Health-related quality of life in Italian children and adolescents with congenital heart diseases.

Giulia Amodeo, Benedetta Ragni, Giulio Calcagni, Simone Piga, Salvatore Giannico, Marie Laure Yammine, Fabrizio Drago, Marta Luisa Ciofi Degli Atti, Angela Rossi, Simona De Stasio and 1 more

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Article in BMC cardiovascular disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Giulia AmodeoUnit of Clinical Psychology, Department of Neuroscience, Bambino Gesù Children's Hospital IRCCS, Rome, Italy. giulia_amodeo@hotmail.it.
Benedetta RagniDepartment of Human Studies, LUMSA University, Rome, Italy.
Giulio CalcagniDepartment of Pediatric Cardiology and Cardiac Surgery, Bambino Gesù Children Hospital IRCCS, Rome, Italy.
Simone PigaClinical Epidemiology Unit, Bambino Gesù Children's Hospital, Rome, Italy.
Salvatore GiannicoDepartment of Pediatric Cardiology and Cardiac Surgery, Bambino Gesù Children Hospital IRCCS, Rome, Italy.
Marie Laure YammineDepartment of Pediatric Cardiology and Cardiac Surgery, Bambino Gesù Children Hospital IRCCS, Rome, Italy.
Fabrizio DragoDepartment of Pediatric Cardiology and Cardiac Surgery, Bambino Gesù Children Hospital IRCCS, Rome, Italy.
Marta Luisa Ciofi Degli AttiClinical Epidemiology Unit, Bambino Gesù Children's Hospital, Rome, Italy.
Angela RossiUnit of Clinical Psychology, Department of Neuroscience, Bambino Gesù Children's Hospital IRCCS, Rome, Italy.
Simona De StasioDepartment of Human Studies, LUMSA University, Rome, Italy.
Teresa Grimaldi CapitelloUnit of Clinical Psychology, Department of Neuroscience, Bambino Gesù Children's Hospital IRCCS, Rome, Italy.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCongenital heart disease (CHD) is the most common congenital anomaly at birth, affecting approximately 1% of live births. In recent decades great medical and surgical advances have significantly increased life expectancy, shifting healthcare professionals' and researchers' interests in patients' Quality of Life (QoL). The main aims of our study were to evaluate generic and condition-specific QoL in a group of Italian children and adolescents with CHD and their parents and examine the level of agreement and directional disagreement between child/adolescent and parents reports on generic and condition-specific QoL.

methodsA cross-sectional study was designed with CHD children and adolescents and their parents referred to the Cardiology Department of "Bambino Gesù" Children's Hospital. The PedsQL scale was used, including generic (PedsQL 4.0) and cardiac-specific modules (PedsQL 3.0) were administered to patients and caregivers. A Kruskal-Wallis test was used to compare generic and cardiac module scores between patients with different ages, CHD diagnoses, and between patients who underwent surgery interventions and/or are currently taking cardiac medications.

results498 families were enrolled in this study. On average, patients reported a good level of generic and condition-specific QoL, as well as their mothers and fathers. Children aged between 5-7 years old reported lower generic and cardiac-specific total QoL levels than children aged 8-12 years and adolescents (13-18 years). With regard to the agreement, patient-parent agreement on condition-specific QoL ranged from 25 to 75% while on generic QoL, it ranged from 19 to 76%. The highest percentage of disagreement between parents and children was found in patients aged 5-7 years old, both for condition-specific and generic QoL rates.

conclusionsOur study contributed to the growing body of knowledge on QoL in CHD, emphasizing the need for these families to receive support from multidisciplinary standardized care, including psychological consultations and support.

Indexed as

Heart Defects, CongenitalQuality of LifeAdolescentChildChild, PreschoolCross-Sectional StudiesFemaleHumansInfant, NewbornItalyParentsSurveys and QuestionnairesCongenital heart diseasesHealth-related quality of lifePediatric heart diseasesQuality of life

Identifiers

PMID35428190
PMCPMC9013137

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.