ArticlePsycho-oncology2022
Financial burden for caregivers of adolescents and young adults with cancer.
Article in Psycho-oncology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
28 citing papers in PubMed, 30 citations in OpenAlex.
- Place of Death Among Early-Onset Colorectal Cancer Decedents in the United States, 1999-2020: National Trends and Disparities.Journal of gastrointestinal cancer · 2026Article
- Financial hardship in cancer family caregivers: a scoping review.BMC palliative care · 2026Article
- Behavioral and Psychological Financial Hardship Among Caregivers of Pediatric Cancer Patients.Cancer medicine · 2026Article
- Family Environment Factors Associated with Symptom Distress Among Korean Adolescents and Young Adults with Cancer: A Cross-Sectional Study.Current oncology (Toronto, Ont.) · 2026Article
- Depressive symptoms among young adult caregivers of parents with dementia in South Korea: the 2019 community health survey.BMC public health · 2026Article
- Social Risk Prevalence in Adolescent and Young Adult Patients With and Without a History of Cancer.JAMA network open · 2026Article
- Adolescent and young adult cancer survivor experiences of financial toxicity: a scoping review.Journal of cancer survivorship : research and practice · 2026Review
- Implementing Financial Screening for Adolescents and Young Adults Treated in the Outpatient Oncology Setting.JCO oncology practice · 2026Article
- Surviving more than cancer: the unseen toll of financial toxicity and basic needs insecurity in adolescent and young adult cancer survivors.BMC cancer · 2026Article
- Characterizing open and avoidant communication in parents' caregiving experiences of adolescents and young adults (AYAs) living with blood cancer: Linking communication and psychosocial outcomes.Palliative & supportive care · 2026Article
- Translation and validation of the Chinese version of the adolescent and young adult psycho-oncology screening tool.Asia-Pacific journal of oncology nursing · 2025Article
- Assessing the Unmet Social Needs and Financial Hardship of Cancer Caregivers: A Scoping Review.Current oncology reports · 2025Article
- Enduring Economic Effects of a Cancer Diagnosis in Adolescence and Young Adulthood.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2025Article
- Non-monetary burdens of out-of-pocket costs incurred by patients and caregivers for medical care: a scoping review.BMJ open · 2025Article
- Development of A Caregiver-Reported Scale for Pediatric Cancer Financial Toxicity (CRS-PCFT).Cancer medicine · 2025Article
- Adaptation, Feasibility, and Acceptability of a Health Insurance Literacy Intervention for Caregivers of Pediatric Cancer Patients (CHAT-C).Current oncology (Toronto, Ont.) · 2025Article
- Preferred and Actual Location of Death in Adolescents and Young Adults With Cancer.JAMA network open · 2025Article
- Financial toxicity, social support, and negative emotions among caregivers of children with cancer: a cross-sectional study in Western China.Frontiers in public health · 2025Article
- Financial toxicity among pediatric oncology families during therapy and early survivorship: a qualitative analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Asking the "Right" Questions about Financial Hardship: Using Cognitive Interviews with Adolescents and Young Adults with Cancer and Their Caregivers to Inform Measure Development.Journal of adolescent and young adult oncology · 2024Article
Corrections and comments
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Authors and funding
11 authors at 6 institutions in 2 countries.
Funding
Abstract
objectiveAdolescent and young adult (AYA) cancer survivors are vulnerable to cancer-related financial burden, which is likely shared by their caregivers. This study aims to enhance an existing conceptual model of financial burden by conducting concept elicitation interviews with caregivers to generate knowledge that can be translated to inform instrumental and psychosocial support in cancer care.
methodsQualitative concept elicitation interviews were conducted with 24 caregivers of AYA cancer survivors (caregivers of adolescents, n = 12; caregivers of emerging adults, n = 12) recruited from four sites. Constant comparative methods were used to identify themes, and results were interpreted and organized into domains of the conceptual model. We also explored COVID-19 related financial impacts among a subset (n = 12) of caregivers.
resultsSeven themes emerged, which varied by age group and strengthened the conceptualization of the model. Themes centered on: (1) direct and indirect costs of cancer; (2) impact of socioeconomic status on financial burden; (3) caregiver desire to shield AYAs from distress due to financial burden; (4) strategies to manage cancer-related costs; (5) worries about AYAs' financial future; (6) seeking and receiving financial support; and (7) navigating the healthcare system. Findings also revealed that COVID-19 exacerbates financial burden for some caregivers.
conclusionsBuilding upon our prior work, we have adapted the conceptual model of financial burden to reflect perspectives of AYAs, oncology providers, and now, caregivers. An important next step is to develop a reliable and valid self-report measure of financial burden among caregivers of AYA cancer survivors.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.