ArticleJournal of medical Internet research2022
Designing a Framework for Remote Cancer Care Through Community Co-design: Participatory Development Study.
Article in Journal of medical Internet research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it, 22 citations in OpenAlex.
- Exploring co-design: a systematic review of concepts, processes, models, and frameworks used in public health research.Journal of public health (Oxford, England) · 2025Pooled it
- Meaningful consumer involvement in cancer care: a systematic review on co-design methods and processes.JNCI cancer spectrum · 2024Pooled it
- Centering Equity During Health Technology Innovation: Scoping Review of Methods and Research Adjustments to Promote Inclusive Coproduction.Journal of medical Internet research · 2026Article
- Towards a feature-based regulatory benchmark for user-centred SaMD design in cancer care.BMJ health & care informatics · 2026Article
- User-Centered Design for Digital Patient-Navigation Tools in Oncology: Scoping Review.JMIR human factors · 2026Article
- Towards an Integrated Framework for Health Surveillance Systems: A Systematic Literature Review of Design Components and Implementation Challenges.Health science reports · 2026Review
- Digital Health Technologies: Learnings and Perspectives From a Patient Engagement Stakeholder Expectations Matrix Study.Journal of medical Internet research · 2025Article
- Mapping Characteristics, Applications, and Implementation Challenges of Virtual Communities in Cancer Care: NASSS Framework-Informed Scoping Review.Journal of medical Internet research · 2025Article
- Satisfaction With Internet Access, Cancer Information-Seeking, and Digital Health Technology: Cross-Sectional Survey Assessment.Journal of medical Internet research · 2025Article
- Using human-centered design to advance health literacy in local health department programming: a case study.BMC public health · 2025Article
- Rethinking participation: design studios for health as a scalable co-design framework for health equity.Frontiers in public health · 2025Article
- A Framework for the Human-Centered Design of Service Processes Enabled by Medical Devices: A Case Study of Wearable Devices for Parkinson's Disease.International journal of environmental research and public health · 2024Article
- Designing Survey-Based Mobile Interfaces for Rural Patients With Cancer Using Apple's ResearchKit and CareKit: Usability Study.JMIR formative research · 2024Article
- A design thinking-led approach to develop a responsive feeding intervention for Australian families vulnerable to food insecurity: Eat, Learn, Grow.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Towards A Framework for Implementing Remote Patient Monitoring From an Integrated Care Perspective: A Scoping Review.International journal of health policy and management · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors at 6 institutions in 2 countries.
Funding
Abstract
backgroundRecent shifts to telemedicine and remote patient monitoring demonstrate the potential for new technology to transform health systems; yet, methods to design for inclusion and resilience are lacking.
objectiveThe aim of this study is to design and implement a participatory framework to produce effective health care solutions through co-design with diverse stakeholders.
methodsWe developed a design framework to cocreate solutions to locally prioritized health and communication problems focused on cancer care. The framework is premised on the framing and discovery of problems through community engagement and lead-user innovation with the hypothesis that diversity and inclusion in the co-design process generate more innovative and resilient solutions. Discovery, design, and development were implemented through structured phases with design studios at various locations in urban and rural Kentucky, including Appalachia, each building from prior work. In the final design studio, working prototypes were developed and tested. Outputs were assessed using the System Usability Scale as well as semistructured user feedback.
resultsWe co-designed, developed, and tested a mobile app (myPath) and service model for distress surveillance and cancer care coordination following the LAUNCH (Linking and Amplifying User-Centered Networks through Connected Health) framework. The problem of awareness, navigation, and communication through cancer care was selected by the community after framing areas for opportunity based on significant geographic disparities in cancer and health burden resource and broadband access. The codeveloped digital myPath app showed the highest perceived combined usability (mean 81.9, SD 15.2) compared with the current gold standard of distress management for patients with cancer, the paper-based National Comprehensive Cancer Network Distress Thermometer (mean 74.2, SD 15.8). Testing of the System Usability Scale subscales showed that the myPath app had significantly better usability than the paper Distress Thermometer (t
conclusionsParticipatory problem definition and community-based co-design, design-with methods, may produce more acceptable and effective solutions than traditional design-for approaches.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.