ArticleResearch involvement and engagement2022
Challenges and adaptations to public involvement with marginalised groups during the COVID-19 pandemic: commentary with illustrative case studies in the context of patient safety research.
Article in Research involvement and engagement, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- A systematic review of influences on engagement with remote health interventions targeting weight management for individuals living with excess weight.International journal of obesity (2005) · 2025Pooled it
- Digital undergraduate medical education and patient and carer involvement: a rapid systematic review of current practice.BMC medical education · 2023Pooled it
- COVID-19 Public Health Measures and Patient and Public Involvement in Health and Social Care Research: An Umbrella Review.International journal of environmental research and public health · 2023Pooled it
- Co-Designing Medication Safety Interventions for Community Pharmacy: Bringing Together People Living With Visual Impairments and Community Pharmacists Using a Modified Nominal Group Technique Approach.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Your voice matters: using participatory film to engage people with chronic pain in public involvement and research.Research involvement and engagement · 2026Article
- How Did Women From South Asian Backgrounds and People Seeking Asylum and Refugees Look After Their Health and the Health of Others During the COVID-19 Pandemic? A Community Research Approach.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Emerging practice in mental health patient and public involvement research advisory groups: a narrative review.BMC psychiatry · 2025Review
- The People's Review protocol: planning an innovative study powered by the public.Research involvement and engagement · 2025Review
- Social and Ethical Aspects of Remote and Hybrid Care in the Special Allocation Scheme in general practice (SEARCH): A mixed methods feasibility study protocol.NIHR open research · 2025Article
- Patient and public involvement in the design of an international clinical trial: real world experience.Research involvement and engagement · 2024Article
- Sustaining connections: feasibility and impact of long-term virtual patient engagement.Research involvement and engagement · 2024Article
- Participatory evaluation of the process of co-producing resources for the public on data science and artificial intelligence.Research involvement and engagement · 2023Article
- Adapting Patient and Public Involvement processes in response to the Covid-19 pandemic.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Active involvement of people with lived experience of suicide in suicide research: a Delphi consensus study.BMC psychiatry · 2023Article
- Reflections of patient and public involvement from a commissioned research project evaluating a nationally implemented NHS programme focused on diabetes prevention.Research involvement and engagement · 2023Article
- "Take a walk in someone else's shoes": the role of participatory arts for health research development and training.Research involvement and engagement · 2023Article
- The impact of patient and public involvement on COVID-19 immunology research: experiences from the UK Coronavirus Immunology Consortium.Research involvement and engagement · 2023Article
- Opportunities and challenges in involving people with lived experience of inclusion health as co-researchers in palliative and end of life research: a rapid review and thematic synthesis.Research involvement and engagement · 2023Review
- Public contributors' preferences for the organization of remote public involvement meetings in health and social care: A discrete choice experiment study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Remote working in public involvement: findings from a mixed methods study.Research involvement and engagement · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors.
Funding
Abstract
Patient and public involvement (PPI) is integral to research on patient safety in the NIHR Greater Manchester Patient Safety Translational Research Centre (NIHR GMPSTRC), and is central to our patient safety research within our theme focusing on people in marginalised groups. Due to the impact of COVID-19, researchers had to adapt how they do PPI. For marginalised groups, remote working and digital adaptations (the key adaptations made in accessing and utilising health services in the United Kingdom during COVID-19) can potentially lead to further marginalisation of people already marginalised and provide new barriers to others. This editorial showcases three case examples of PPI with marginalised groups during COVID-19, these are with: (1) adults with vision impairments, (2) adults and carers with lived experience of self-harm and/ or suicide and (3) adults with lived experience of homelessness. In these case examples, we focus on challenges relating to key aspects of PPI during the pandemic. First, setting up a PPI advisory group and secondly maintaining relationships and effective PPI with a pre-existing advisory group. We contrast these examples using more traditional ways of 'doing PPI' i.e. involving public contributors in various stages of the research cycle, with a more fully 'co-produced' approach to research when developing a new patient safety intervention. Important considerations for PPI with marginalised groups during COVID-19 include: how to avoid exacerbating the digital divide when using video conferencing for PPI, the need for enhanced awareness around flexibility and resources, and the value of working closely with specialist charities to enable adaptations that are sensitive to the changed circumstances and needs of PPI contributors.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.