ArticleBMC palliative care2022
Preferences for home care to enable home death among adult patients with cancer in late palliative phase - a grounded theory study.
Article in BMC palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 2 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 2 syntheses or guidelines pooled it, 52 citations in OpenAlex.
- Needs and health-related quality of life domains relevant to people in Europe with advanced cancer in need of palliative care: a systematic review of qualitative research.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Pooled it
- Pooled it
- Evaluating the Potential of Machine Learning and Wearable Devices in End-of-Life Care in Predicting 7-Day Death Events Among Patients With Terminal Cancer: Cohort Study.Journal of medical Internet research · 2023Trial
- Considerations of equity in the development of tools that identify and respond to end-of-life carer support needs: a scoping review.BMJ open · 2026Article
- Effective practices and transdisciplinary team-based approaches in home palliative care for terminal cancer patients: a qualitative descriptive study.BMC palliative care · 2026Article
- Exploring the factors that prevent or facilitate palliative care at 'home' for adults experiencing structural vulnerability: a scoping review.International journal for equity in health · 2026Article
- Beyond Treatment, Understanding the Holistic Needs of Cancer Patients and Family Caregivers: A Qualitative Study from the Perspectives of Patients, Family Caregivers, and Health Care Providers.Cancer management and research · 2026Article
- General practitioners' relational familiarity with home-dwelling patients in the palliative phase: Basis - or bias - for individualised care.Palliative care and social practice · 2026Article
- Preparing for home death in rural areas - the experience of family caregivers providing palliative cancer care.International journal of circumpolar health · 2025Article
- Development and psychometric assessment of a care competency scale for family caregivers in home palliative care.Asia-Pacific journal of oncology nursing · 2025Article
- What matters to patients with cancer receiving home care at the end of life? A qualitative study comparing patients' and healthcare professionals' views.International journal of qualitative studies on health and well-being · 2025Article
- Initial quality of life and influencing factors in patients with advanced cancer receiving home hospice care: A propensity score-matched analysis stratified by survival period.Asia-Pacific journal of oncology nursing · 2025Article
- Acceptability of supporting lay-carer administration of anticipatory subcutaneous medications at home: a qualitative study using the theoretical framework of acceptability.BMC palliative care · 2025Article
- Patients' experiences of quality in palliative care and advance care planning in primary care: a qualitative study.BMC palliative care · 2025Article
- A short form tool for clinical assessment of caregivers' reaction.BMC palliative care · 2025Article
- Understanding peer support among healthcare assistants delivering hospice care at home: a protocol for a realist review.BMJ open · 2025Article
- Motivations for choosing "home" as one's preferred place of death: A scoping review.Palliative & supportive care · 2025Article
- Navigating toward acceptance of death: Home-dwelling patients in the palliative phase.BMC palliative care · 2025Article
- A Personalised Caring Approach at Home-Patients, Relatives and Nurses' Experiences of Specialised Palliative Care: An Integrative Literature Review.Nursing open · 2025Review
- Being Seen as a Unique Person is Essential in Palliative Care at Home and Nursing Homes: A Qualitative Study With Patients and Relatives.The American journal of hospice & palliative care · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe wish to be cared for and to die at home is common among people with end-stage cancer in the western world. However, home deaths are declining in many countries. The aim of this study was to explore the preferences for home care over time to enable home death among adult patients with cancer in the late palliative phase.
methodsA qualitative method was applied according to grounded theory (Corbin & Strauss, 2008). Data was collected using individual interviews (n = 15) with nine adult patients. One to two follow up interviews were conducted with four patients. Sampling, data collection and constant comparative analysis were undertaken simultaneously.
resultsThe findings are presented as a conceptual model of patients' preferences for care to enable home death. The core category "Hope and trust to get the care I need to die at home" showed that the preference to die at home seemed stable over time and did not change with deterioration in health status and progression in illness. Five categories were related to the core category. The categories "being in the present", "be safe and in charge" and "be seen and acknowledged" describe the patients' preferences to live a meaningful life until death and be the same person as always. These preferences depended on the categories describing characteristics of healthcare personnel and the organisation of care: "reliable, compassionate and competent healthcare personnel" and "timely, predictive, continuous and adaptive organisation".
conclusionAn important preference over time was to be here and now and to live as meaningful a life as possible until death. Moreover, the patients preferred to retain control over their lives, to be autonomous and to be seen as the person they had always been. To achieve this, person-centred care provided by healthcare personnel with competence, skills and enough/ample time were required. In addition, home care needed to be organised in a way that ensured continuity and predictability. Systematic implementation of a person-centred care model and the use of advanced home care plans with continued re-evaluation for patients' preferences of home care were proposed measures to enable home death.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.