SynthesisFrontiers in psychology2022
Exploring the Needs of Spousal, Adult Child, and Adult Sibling Informal Caregivers: A Mixed-Method Systematic Review.
Synthesis in Frontiers in psychology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 25 citations in OpenAlex.
- Mood states and well-being of spouses of fibromyalgia patients: a systematic review and meta-analysis.Frontiers in psychology · 2024Pooled it
- Caregiving experiences of older spouses with frailty: an exploratory qualitative study.International journal of qualitative studies on health and well-being · 2026Article
- Experiences of children and adults having a sibling with profound intellectual and multiple disabilities: a qualitative systematic review.International journal of nursing studies advances · 2026Review
- Lonely boats swaying in the storm: experiences and supportive needs of adult only-children confronting parental end-of-life care: a qualitative study.BMC palliative care · 2026Article
- Use of Personal and Social Resourcefulness by Adult-Child and Spousal Caregivers of Persons with Dementia.International journal of aging & human development · 2026Article
- Experiences of Formal and Informal Support Among Adult-Daughter Caregivers of People With Dementia in Sweden: A Qualitative Study.Dementia (London, England) · 2026Article
- Parental caregivers of adolescents with mental health conditions: an exploratory qualitative study of challenges and coping strategies.BMC psychology · 2026Article
- Is Perceived Family Cohesion Associated with Family Caregiver Role and Caregiver-Related Characteristics? A Comparison of Spousal and Adult-Child Caregivers.Healthcare (Basel, Switzerland) · 2026Article
- A national snapshot of family caregivers in the United States: characterizing demographics and health among caregivers over age 50.Frontiers in public health · 2026Article
- Experiences of palliative care for patients with pulmonary fibrosis: A qualitative exploration of patients and partners perspectives.PloS one · 2026Article
- Psychosocial burdens and unmet supportive care needs of partners and relatives of individuals with Li-Fraumeni syndrome: A mixed-methods study.Journal of genetic counseling · 2025Article
- Article
- "Are you listening?": Experiences shared online by family caregivers of patients in the palliative phase during the Covid-19-pandemic.PloS one · 2024Article
- Patient quality of life and caregiver experiences in ovarian cancer: How are they related?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Examining Online Behaviors of Adult-Child and Spousal Caregivers for People Living With Alzheimer Disease or Related Dementias: Comparative Study in an Open Online Community.Journal of medical Internet research · 2023Article
- Scoping review: quality of life of siblings of children who are deaf and hard of hearing, have a vision or motor impairment.Frontiers in rehabilitation sciences · 2023Article
- Exploring the burden and support needs of informal caregivers for the older adults in Kazakhstan: a mixed-methods study protocol.Frontiers in public health · 2023Article
- The positive impact of informal spousal caregiving on the physical activity of older adults.Frontiers in public health · 2022Article
- Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Informal caregivers (ICGs) provide care to their family or friends in case of an illness, disability, or frailty. The caregiving situation of informal caregivers may vary based on the relationship they have with the care recipient (CR), e.g., being a spouse or being an adult child. It might be that these different ICGs also have different needs. This study aims to explore and compare the needs of different groups of ICGs based on the relationship they have with their CR. We conducted a systematic review, performing a search in the databases PubMed, CINAHL, and PsycINFO. We included studies with qualitative, quantitative, or mixed-method study designs. We analyzed the data using the thematic analysis method. We included 22 articles (18 qualitative; 4 quantitative). The included articles reported the needs of ICGs taking care of a spouse (spousal ICGs), parent (adult child ICG), or sibling aged 18 years or above (adult sibling ICGs). We did not include other relationships due to the limited number of articles on these relationships. The most prominent needs reported by the spousal, adult child, and adult sibling ICGs were the need for information and need for support. The three groups differed in their needs as well. Adult child and adult sibling ICGs indicated a need to be acknowledged by the people around them for their role of carer, while they also needed to be seen as an individual having their own personal needs. Moreover, spousal ICGs indicated a unique need of redefining their role and relationship with their CR. Overall, the findings indicate that along with experiencing common needs, the investigated groups have unique needs as well. Knowing the needs of different groups of ICGs can help develop tailored solutions to improve the quality of life of the ICGs and their CR.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.