ArticleJournal of the American Medical Informatics Association : JAMIA2022
Pediatric sexual orientation and gender identity data collection in the electronic health record.
Article in Journal of the American Medical Informatics Association : JAMIA, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Improving radiology information systems for inclusivity of transgender and gender-diverse patients: what are the problems and what are the solutions? A systematic review.Journal of medical radiation sciences · 2024Pooled it
- Including gender data in electronic health records to improve the care provided to transgender and non-binary patients in Quebec: A queer bioethics analysis.International journal of transgender health · 2026Article
- When algorithms infer gender: revisiting computational phenotyping with electronic health records data.Biology of sex differences · 2025Review
- Acceptability of Screening for Gender Identity in a National Sample of Parents with Young Children.Transgender health · 2025Article
- Associations Between Eating Disorders and Sociodemographic Factors in Adolescent Patients Since the Start of the COVID-19 Pandemic.Children (Basel, Switzerland) · 2025Article
- Being Out: Impact of Disclosure on Sexual and Reproductive Healthcare Receipt in a Sample of Sexual Minority Women and Gender Diverse Youth.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2025Article
- A roadmap for engagement and inclusion of LGBTQIA+ people in clinical research.Nature medicine · 2025Article
- Collecting Sociodemographic Data in Pediatric Emergency Research: A Working Group Consensus.Pediatrics · 2024Article
- Impact of sex used for assignment of reference intervals in a population of patients taking gender-affirming hormones.Journal of clinical & translational endocrinology · 2024Article
- Article
- Inclusive Approaches for Measuring Demographics of Underrepresented Populations in STEM and Biomedical Research Training Programs.Journal of STEM outreach · 2024Article
- Cisgender Privilege in Public Health Research.American journal of public health · 2024Article
- An Electronic Teen Questionnaire, the eTeenQ, for Risk Behavior Screening During Adolescent Well Visits in an Integrated Health System: Development and Pilot Implementation.JMIR pediatrics and parenting · 2024Article
- Advancing Pediatric Sexual Orientation and Gender Identity Data Collection.American journal of public health · 2024Article
- Sexual Orientation and Gender Identity Data Completeness at US Federally Qualified Health Centers, 2020 and 2021.American journal of public health · 2023Article
- Article
- Readiness to Provide Oral and Injectable PrEP for Sexual and Gender Minority Youth Among Healthcare Providers and Clinics in the U.S. Northeast.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
The systematic documentation of sexual orientation and gender identity data in electronic health records can improve patient-centered care and help to identify and address health disparities affecting sexual and gender minority populations. Although there are existing guidelines for sexual orientation and gender identity data among adult patients, there are not yet standard recommendations for pediatric patients. In this article, we discuss methods that pediatric primary care organizations can use to collect and document sexual orientation and gender identity information with children and adolescents in electronic health records. These recommendations take into consideration children's developmental stages, the role of caregivers, and the need to protect the privacy of this information. We also focus on the current limitations of electronic health records in capturing the nuances of sexual and gender minority identities and make suggestions for addressing these limitations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.