Evidence map›Paper›PMID 35396151›Full record

ArticleResearch in social & administrative pharmacy : RSAP2022

Helping the Helpers - A research protocol for user-centered technology to aid caregiver management of medications for people with Alzheimer's disease and related dementias.

Nicole E Werner, Noll L Campbell, Malaz Boustani, Aaron Ganci, Richard J Holden

Open access · greenAbstract read
In one paragraph

Article in Research in social & administrative pharmacy : RSAP, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
4.3field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 31 citations in OpenAlex.

  1. Article
  2. Invested Partner Feedback on Technology Assistance in Dementia (Tech-AiD).Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
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  4. Perspectives on the Challenges of Planning for and Accessing Long-Term Dementia Care Services Through Medicaid and Medicaid Waivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
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  14. Co-Design with Patients for Improving Patient Safety: Strategies, Barriers and pitfalls.Proceedings of the Human Factors and Ergonomics Society ... Annual Meeting. Human Factors and Ergonomics Society. Annual meeting · 2023
    Article
  15. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Nicole E WernerDepartment of Industrial and Systems Engineering, University of Wisconsin-Madison, USA. Electronic address: nwerner3@wisc.edu.
Noll L CampbellPurdue University, College of Pharmacy, Regenstrief Institute, Inc, USA.
Malaz BoustaniIndiana University School of Medicine, Regenstrief Institute, Inc, USA.
Aaron GanciDepartment of Visual Communication Design, IUPUI Herron School of Art and Design, USA.
Richard J HoldenDepartment of Health & Wellness Design, Indiana University School of Public Health-Bloomington, Regenstrief Institute, Inc, USA.
Regenstrief Institute · USIndiana University – Purdue University Indianapolis · USUniversity of Wisconsin–Madison · US

Funding

Helping the helpers: User-centered technology to aid caregiver management of medications for people with ADRDR21AG072418 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI HOLDEN, RICHARD J, WERNER, NICOLE E · 2021 to 2021
$425k
NIA NIH HHS R21 AG072418
6 · The paper itself

Abstract

BACKGROUND AND

objectiveSystematically supporting caregiver-assisted medication management through IT interventions is a critical area of need toward improving outcomes for people living with ADRD and their caregivers, but a significant gap exists in the evidence base from which IT interventions to support caregivers' medication tasks can be built. User-centered design can address the user needs evidence gap and provide a scientific mechanism for developing IT interventions that meet caregivers' needs. The present study employs the three phases of user-centered design to address the first two stages of the NIH Stage Model for Behavioral Intervention Development.

methodsWe will conduct a three-phase study employing user-centered design techniques across three aims: Aim 1) assess the needs of ADRD caregivers who manage medications for people with ADRD (Stage 0); Aim 2) co-design a prototype IT intervention to support caregiver-assisted medication management collaboratively with ADRD caregivers (Stage IA); and Aim 3) feasibility test the prototype IT intervention with ADRD caregivers (Stage IB). DISCUSSION: Our user-centered design protocol provides a template for integrating the three phases of user-centered design to address the first two stages of the NIH Stage Model that can be used broadly by researchers who are developing IT interventions for ADRD caregivers.

Indexed as

Alzheimer DiseaseCaregiversHumansTechnologyAlzheimer's disease and related dementiasCaregiversDementia caregivingHuman-centered designMedication managementmHealthMobile appUser-centered design

Identifiers

PMID35396151
PMCPMC9308637
OpenAlexW4220703457

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.