ArticlePLoS neglected tropical diseases2022
The life experience of leprosy families in maintaining interaction patterns in the family to support healing in leprosy patients in Indonesian society. A phenomenological qualitative study.
Article in PLoS neglected tropical diseases, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.
- Engagement strategies for people living with leprosy: a scoping review of studies published from 1992 to 2024.Archives of public health = Archives belges de sante publique · 2026Pooled it
- Relationship between social participation and stigma in people affected by leprosy: A cross-sectional study in northeastern Brazil.Belitung nursing journal · 2026Article
- Fostering empowerment: Transition from self-help groups to cooperatives in leprosy-affected communities in Nepal.PLoS neglected tropical diseases · 2025Article
- A socio-ecological model of the management of leprosy reactions in Indonesia and India using the experiences of affected individuals, family members and healthcare providers.BMC health services research · 2025Article
- Implementation fidelity in leprosy care and support for disability prevention and management in Rupandehi, Nepal: A qualitative study.PloS one · 2025Article
- Participatory development of Indonesia's national action plan for zero leprosy: strategies and interventions.Frontiers in public health · 2025Article
- Measuring social vulnerability in communities and its association with leprosy burden through spatial intelligence in central West Brazil to guide strategic actions.Archives of public health = Archives belges de sante publique · 2024Article
- Experiences of social stigma of people living with Hansen's disease in Brazil: silencing, secrets and exclusion.International health · 2024Article
- Measuring leprosy case detection delay and associated factors in Indonesia: a community-based study.BMC infectious diseases · 2023Article
- Factors affecting treatment adherence among leprosy patients: Perceptions of healthcare providers.Heliyon · 2023Article
- Clusters of risk for the occurrence of leprosy and disabilities in children under 15 years of age in Cuiabá: a geospatial study.Revista brasileira de epidemiologia = Brazilian journal of epidemiology · 2023Article
- Correction: The life experience of leprosy families in maintaining interaction patterns in the family to support healing in leprosy patients in Indonesian society. A phenomenological qualitative study.PLoS neglected tropical diseases · 2022Article
Corrections and comments
- Erratum issued
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily involvement in overcoming the severity of leprosy is very important in the life of leprosy sufferers in communities who experience the clinical and, psychological, social and behavioral consequences of the disease. However, this need, psychosocial, is felt to be not optimal. This study is to identify how the experiences of family members as caregivers provide assistance to individuals with leprosy in improving healing and maintaining patterns of interaction in the family.
methodsThe design uses qualitative research with in-depth, face-to-face interviews with family members in a semi-structured manner with the hope of obtaining complete data. Using purposive sampling with Participatory Interpretative Phenomenology analysis, there are 12 families with 15 family members consisting of 4 men and 11 women.
resultsThis study produced a family theme that tried to follow what would happen to individuals with leprosy, with four sub-categories: 1) Using various coping alternatives to recognize the disease, 2) Family members in the shadow of leprosy, 3) Trying to empathize with other family members. sick, 4) Caring for the emotional response of the family and seeking support.
conclusionsThis analysis shows that deficiency in cognitive aspects can be closed by maintaining a lifestyle in the family through efforts to understand, support, establish communication, increase maximum involvement in restoring self-confidence, especially in individuals with leprosy with psychosocial problems in the family. The results of this study can be used as psychosocial support in maintaining communication between family members to support treatment programs and accelerate the recovery of leprosy.
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