Evidence map›Paper›PMID 35390091›Full record

ArticlePloS one2022

A multi-stage process to develop quality indicators for community-based palliative care using interRAI data.

Dawn M Guthrie, Nicole Williams, Cheryl Beach, Emma Buzath, Joachim Cohen, Anja Declercq, Kathryn Fisher, Brant E Fries, Donna Goodridge, Kirsten Hermans and 9 more

Erratum issuedAbstract read
In one paragraph

Article in PloS one, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

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  12. Critique of the Peaceful End-of-Life Theory Using Meleis' 2012 Approach.Iranian journal of nursing and midwifery research
    Review
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

19 authors.

Dawn M GuthrieDepartment of Kinesiology and Physical Education, Wilfrid Laurier University, Waterloo, Ontario, Canada.ORCID 0000-0003-3241-6580
Nicole WilliamsDepartment of Kinesiology and Physical Education, Wilfrid Laurier University, Waterloo, Ontario, Canada.
Cheryl BeachIntegrated Community Services, Fraser Health, Surrey, British Columbia, Canada.
Emma BuzathProvincial Palliative and-End-of-Life Care, Seniors Health and Continuing Care, Alberta Health Services, Calgary, Alberta, Canada.
Joachim CohenEnd-of-Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium.
Anja DeclercqLUCAS - Center for Care Research and Consultancy, KU Leuven, Leuven, Belgium.
Kathryn FisherSchool of Nursing, McMaster University, Hamilton, Ontario, Canada.
Brant E FriesDepartment of Health Management and Policy and Department of Geriatric and Palliative Medicine, University of Michigan, Ann Arbor, Michigan, United States of America.ORCID 0000-0002-1592-2433
Donna GoodridgeCollege of Medicine, University of Saskatchewan, Saskatoon, Saskatchewan, Canada.
Kirsten HermansLUCAS - Center for Care Research and Consultancy, KU Leuven, Leuven, Belgium.
John P HirdesSchool of Public Health Sciences, University of Waterloo, Waterloo, Ontario, Canada.
Hsien SeowDepartment of Oncology, McMaster University, Hamilton, Ontario, Canada.
Maria SilveiraDivision of Geriatric and Palliative Medicine, Department of Internal Medicine, University of Michigan, Ann Arbor, Michigan, United States of America.
Aynharan SinnarajahDepartment of Medicine, Queen's University, Kingston, Ontario, Canada.ORCID 0000-0002-7967-159X
Susan StevensNova Scotia Health, Halifax, Halifax, Nova Scotia, Canada.
Peter TanuseputroDepartment of Medicine, University of Ottawa, Ottawa, Ontario, Canada.
Deanne TaylorResearch Department, Interior Health Authority, Kelowna, British Columbia, Canada.
Christina VadeboncoeurDepartment of Pediatrics, University of Ottawa, Ottawa, Ontario, Canada.
Tracy Lyn Wityk MartinProvincial Palliative and-End-of-Life Care, Seniors Health and Continuing Care, Alberta Health Services, Calgary, Alberta, Canada.

Funding

CIHR PJT-156359
6 · The paper itself

Abstract

backgroundIndividuals receiving palliative care (PC) are generally thought to prefer to receive care and die in their homes, yet little research has assessed the quality of home- and community-based PC. This project developed a set of valid and reliable quality indicators (QIs) that can be generated using data that are already gathered with interRAI assessments-an internationally validated set of tools commonly used in North America for home care clients. The QIs can serve as decision-support measures to assist providers and decision makers in delivering optimal care to individuals and their families.

methodsThe development efforts took part in multiple stages, between 2017-2021, including a workshop with clinicians and decision-makers working in PC, qualitative interviews with individuals receiving PC, families and decision makers and a modified Delphi panel, based on the RAND/ULCA appropriateness method.

resultsBased on the workshop results, and qualitative interviews, a set of 27 candidate QIs were defined. They capture issues such as caregiver burden, pain, breathlessness, falls, constipation, nausea/vomiting and loneliness. These QIs were further evaluated by clinicians/decision makers working in PC, through the modified Delphi panel, and five were removed from further consideration, resulting in 22 QIs.

conclusionsThrough in-depth and multiple-stakeholder consultations we developed a set of QIs generated with data already collected with interRAI assessments. These indicators provide a feasible basis for quality benchmarking and improvement systems for care providers aiming to optimize PC to individuals and their families.

Indexed as

Home Care ServicesPalliative CareDelphi TechniqueHumansNorth AmericaQuality Indicators, Health Care

Identifiers

PMID35390091
PMCPMC8989210

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.