Evidence map›Paper›PMID 35388038›Full record

Trial reportScientific reports2022

A pilot study of disease related education and psychotherapeutic support for unresolved grief in parents of children with CF.

André Schultz, Andrea Barrett, Elizabeth Balding, Wesley Billingham, Cindy Branch-Smith, Zubin Grover, Gisele Yikilmaz, Crystal Bourke, Julie Depiazzi, Nicole Sander and 3 more

Open access · goldAbstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Scientific reports, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.6field-weighted citation impact, top 34% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 3 citations in OpenAlex.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 5 institutions in 2 countries.

André SchultzWal-Yan Respiratory Research Centre, Telethon Kids Institute, University of Western Australia, Perth, Australia. andre.schultz@health.wa.gov.au.
Andrea BarrettPerth Children's Hospital, Perth, Australia.
Elizabeth BaldingWal-Yan Respiratory Research Centre, Telethon Kids Institute, University of Western Australia, Perth, Australia.
Wesley BillinghamWal-Yan Respiratory Research Centre, Telethon Kids Institute, University of Western Australia, Perth, Australia.
Cindy Branch-SmithWal-Yan Respiratory Research Centre, Telethon Kids Institute, University of Western Australia, Perth, Australia.
Zubin GroverPerth Children's Hospital, Perth, Australia.
Gisele YikilmazWal-Yan Respiratory Research Centre, Telethon Kids Institute, University of Western Australia, Perth, Australia.
Crystal BourkePerth Children's Hospital, Perth, Australia.
Julie DepiazziPerth Children's Hospital, Perth, Australia.
Nicole SanderPerth Children's Hospital, Perth, Australia.
Juliet FosterWoolcock Institute of Medical Research, Sydney, Australia.
Matthew CooperWal-Yan Respiratory Research Centre, Telethon Kids Institute, University of Western Australia, Perth, Australia.
Florian ZepfWal-Yan Respiratory Research Centre, Telethon Kids Institute, University of Western Australia, Perth, Australia.
The Kids Research Institute Australia · AUPerth Children's HospitalUniversity of Western Australia · AUPrincess Margaret Hospital for Children · AUWoolcock Institute of Medical Research · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Diagnosis of chronic disease in a child can result in unresolved grief (UG) in parents. This study aimed to evaluate the efficacy of psychological insight-oriented therapy (IOT) as a treatment for UG compared to disease related education in parents of children with cystic fibrosis (CF). Sequence of delivery, first IOT then disease related education (or vice versa) was also examined, to let all participants experience both interventions. Parents were screened for UG. Parents with UG were randomised to either five 1-h sessions of IOT or five 1-h sessions of education. Measures were assessed pre-intervention, after the first intervention period (primary efficacy assessment), and after the second intervention period (swapping intervention). Forty-seven parents were screened of which 46.8% (22/47) had UG. Median duration of UG was 5 years (range: 6 months-14 years). Anxiety (50% vs. 20%, p = 0.03) and stress (59% vs. 28%, p = 0.03) were significantly more prevalent in parents with UG. There was no difference between arms in the odds of UG resolving either following the first intervention period (OR 0.88; 95% CI 0.5, 1.5) or the second intervention period (OR 0.91; 95% CI 0.5, 1.6). While not statistically significant, adjusted mean values for seven of the eight mental health measures were lower in the IOT (first) arm compared to the ED (first) arm, following the first intervention period. UG is a significant burden for families affected by CF. Provision of disease related education and psychological support, regardless of sequence, can result in resolution of grief.Trial registration number: ACTRN12621000796886, date of registration 24/06/2021, retrospectively registered.

Indexed as

Cystic FibrosisChildGriefHumansMental HealthParentsPilot Projects

Identifiers

PMID35388038
PMCPMC8987037
OpenAlexW4223433634

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.