Evidence map›Paper›PMID 35386742›Full record

ArticleJournal of scleroderma and related disorders2021

Patient preferences for systemic sclerosis treatment: A descriptive study within an Italian cohort.

Khadija El Aoufy, Cosimo Bruni, Laura Rasero, Marco Matucci Cerinic, Daniel Eric Furst

Open access · greenAbstract read
In one paragraph

Article in Journal of scleroderma and related disorders, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.3field-weighted citation impact, top 41% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 3 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 2 countries.

Khadija El AoufyDepartment of Experimental and Clinical Medicine, AOUC, University of Florence, Italy.ORCID https://orcid.org/0000-0003-3278-8296
Cosimo BruniDepartment of Experimental and Clinical Medicine, AOUC, University of Florence, Italy.ORCID https://orcid.org/0000-0003-2813-2083
Laura RaseroDepartment of Health Science, AOUC, University of Florence, Italy.
Marco Matucci CerinicDepartment of Experimental and Clinical Medicine, AOUC, University of Florence, Italy.
Daniel Eric FurstDepartment of Experimental and Clinical Medicine, AOUC, University of Florence, Italy.
University of Florence · ITUniversity of Washington · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objectives: The aim of this study is to ascertain systemic sclerosis patients' preferences regarding the formulations of the medications they use. Methods: We undertook questionnaires and interviews aimed at understanding systemic sclerosis patients' preferences with respect to the medications they used. Results: Among 160 systemic sclerosis patients, we found that the majority does not have difficulty taking their medication. However, preferences were identified (81.25% - 65/80 - preferred oral meds and 47.50% - 38/80 - disliked rectal/vaginal meds), as well as some systemic sclerosis patients have significant difficulties using their medications. In fact, factors such as swallowing and fine finger motion difficulties were frequent, while intravenous/intramuscular/subcutaneous medicines were usually not preferred because they are felt as inconvenient (intravenous = 33.4% and subcutaneous/intramuscular = 10%) or painful (intravenous = 37.50% and subcutaneous/intramuscular = 10%). Conclusion: Most systemic sclerosis patients are able to take their medication despite having some difficulties. However, as there were clear preferences, we could improve patients' adherence to drug therapy if taking these preferences into account.

Indexed as

drug administrationmedicationpatient preferencesSclerodermasystemic sclerosis

Identifiers

PMID35386742
PMCPMC8892923
OpenAlexW3110506918

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.