ArticleFrontiers in psychology2022
"A Group of Fellow Travellers Who Understand": Interviews With Autistic People About Post-diagnostic Peer Support in Adulthood.
Article in Frontiers in psychology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 4 syntheses or guidelines pooled it, 48 citations in OpenAlex.
- 'A certain magic' - autistic adults' experiences of interacting with other autistic people and its relation to Quality of Life: A systematic review and thematic meta-synthesis.Autism : the international journal of research and practice · 2025Pooled it
- Post-diagnostic support for adults diagnosed with autism in adulthood in the UK: A systematic review with narrative synthesis.Autism : the international journal of research and practice · 2025Pooled it
- Pooled it
- Experiences of females on the autism spectrum through the perspective of minority stress theory: a review.Frontiers in psychiatry · 2025Pooled it
- "I Accept Them, They Accept Me, We Enjoy Our Time Together": Autistic Adults' Preferences and Perceptions of Relationships With Other Autistic People.Autism : the international journal of research and practice · 2026Article
- Meta-Synthesis of Autistic Adults' First-Person Perspectives About Mental Health-Related Services.Autism in adulthood · 2026Review
- Nor weak ties, nor strong ties: Personal support networks and relations between autistic peers.Autism : the international journal of research and practice · 2026Article
- Autism and the Menopause Transition: A Mixed-Methods Systematic Review.Autism in adulthood · 2025Article
- "I'm not feeling alone in my experiences": How newly diagnosed autistic adults engage with a neurodiversity-affirming "Welcome Pack".Autism : the international journal of research and practice · 2025Article
- Navigating Neurotypical Norms in Academic Research: A Perspective from an Autistic Early Career Researcher.Autism in adulthood · 2025Article
- Exploring Lived Experiences of Receiving a Diagnosis of Autism in Adulthood: A Systematic Review.Autism in adulthood · 2025Review
- Article
- "A perfect storm": Autistic experiences of menopause and midlife.Autism : the international journal of research and practice · 2024Article
- Social self-efficacy and mental well-being in autistic adults: Exploring the role of social identity.Autism : the international journal of research and practice · 2024Article
- Diagnosing Autism in Adults: Clinically Focused Recommendations.Journal of health service psychology · 2024Article
- Understanding the post-diagnostic support priorities of autistic adults in the United Kingdom: A co-produced modified Delphi study.Autism : the international journal of research and practice · 2024Article
- Autistic adults' experiences of managing wellbeing and implications for social prescribing.Disability & society · 2024Article
- "Peas in a pod": Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults.Journal of autism and developmental disorders · 2023Article
- Evaluating the online delivery of an autistic-led programme to support newly diagnosed or identified autistic adults.Autism & developmental language impairmentsArticle
- Virtual group-based mindfulness program for autistic women: A feasibility study.Women's health (London, England)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
Receiving a diagnosis of autism in adulthood can be a life changing event, impacting identity, relationships, and mental health. A lack of post-diagnostic support has been highlighted by autistic adults, their allies, clinicians, and service providers. It can be a source of distress for autistic adults, reinforcing feelings of social isolation and rejection. Peer support could be a cost-effective, flexible, and sustainable model to provide community-based support for autistic adults. However, there is little research on the value of peer support, despite calls from the autistic community. This qualitative study explored autistic experiences and needs post-diagnosis, identifying specific ways that peer support may benefit them, and exploring the limitations of peer support. Twelve autistic adults who had all received an autism diagnosis in adulthood completed a semi-structured interview focussing on the diagnostic experience, post-diagnostic support needed and provided, engagement with the autistic community, and post-diagnostic peer support. Thematic analysis of interview transcripts resulted in four themes: (1) Mismatch in support needed and provided; (2) Community connection; (3) Flexible and personalised support; and (4) Sustainability. Participants indicated that peer support may be a useful mechanism to support autistic adults' post-diagnosis and offers unique opportunities not available through other support channels. Though informal peer support exists, it could be more sustainable and effective if well-supported and funded.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.