Evidence map›Paper›PMID 35362669›Full record

ArticleCancer medicine2022

"You are not alone": Connecting through a bereaved parent mentor program for parents whose child died of cancer.

Michael J McNeil, Ashley Kiefer, Cameka Woods, Brittany Barnett, Kathryn Berry-Carter, Lisa Clark, Belinda N Mandrell, Jennifer Snaman, Erica C Kaye, Justin N Baker

Open access · goldAbstract read
In one paragraph

Article in Cancer medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
4.7field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 14 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 3 institutions in 1 country.

Michael J McNeilDivision of Quality and Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.ORCID 0000-0001-8817-1995
Ashley KieferChildren's Hospital New Orleans, New Orleans, Louisiana, USA.
Cameka WoodsDivision of Quality and Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.
Brittany BarnettDepartment of Family, Guest and Volunteer Services, St. Jude Children's Research Hospital Memphis, Memphis, Tennessee, USA.
Kathryn Berry-CarterDepartment of Family, Guest and Volunteer Services, St. Jude Children's Research Hospital Memphis, Memphis, Tennessee, USA.ORCID 0000-0001-7462-0796
Lisa ClarkDivision of Quality and Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.
Belinda N MandrellDepartment of Pediatrics, Division of Nursing Research, St. Jude Children's Research Hospital Memphis, Memphis, Tennessee, USA.
Jennifer SnamanDepartment of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, Massachusetts, USA.ORCID 0000-0002-2306-8994
Erica C KayeDivision of Quality and Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.ORCID 0000-0002-6522-3876
Justin N BakerDivision of Quality and Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.
St. Jude Children's Research Hospital · USBoston Children's Hospital · USChildren's Hospital of New Orleans · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundBereavement after the death of a child is devastating and associated with worse physical and psychosocial well-being in parents. Evidence suggests that parents desire and benefit from support provided by other bereaved parents. To foster this peer support, an institutional peer-to-peer mentorship program for bereaved parents was established, through which trained bereaved parent mentors offer support for newly bereaved parents.

methodsUsing a retrospective cohort design, we describe the characteristics of participants of the Bereaved Parent Mentorship program. Trained bereaved parent mentors documented encounters with newly bereaved parent mentees using a secure internet-based form. Mentors summarized each encounter including any concerns or need for professional psychosocial support. Descriptive statistics were used to describe mentor and mentee characteristics; free text from encounter summaries was qualitatively analyzed using content analysis.

resultsA total of 1368 documented encounters occurred between 150 mentees and 39 mentors from January 1, 2014 to February 29, 2020. Only seven encounters (0.5%) were flagged as serious concern necessitating professional psychosocial support. Four key themes in the encounters between mentors and mentees emerged, including: descriptions of the grief experience, ways in which a mentor supported their mentee, challenges the mentor experienced in supporting the mentee, and personal benefit gained by the mentor from supporting their mentee.

conclusionThis structured Bereaved Parent Mentorship program fostered rich interactions between bereaved parent participants, with very few encounters requiring professional assistance. Future research will assess the impact of bereaved mentor programs on resilience and psychosocial, physical, and functional well-being of parents.

Indexed as

MentorsNeoplasmsChildHumansParentsProgram EvaluationRetrospective Studiesbereaved parentsbereavementgriefpediatric palliative carepeer-to-peer mentorship

Identifiers

PMID35362669
PMCPMC9468435
OpenAlexW4221004497

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.