Evidence map›Paper›PMID 35354412›Full record

ArticlePalliative medicine2022

Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: A mixed methods, multi-stage design.

Bruce Mason, Emma Carduff, Sheonad Laidlaw, Marilyn Kendall, Scott A Murray, Anne Finucane, Sebastien Moine, Joannes Kerssens, Andrew Stoddart, Sian Tucker and 7 more

Open access · hybridAbstract read
In one paragraph

Article in Palliative medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
2.6field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it, 15 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. [S1 guideline on sustainability in intensive care and emergency medicine].Medizinische Klinik, Intensivmedizin und Notfallmedizin · 2025
    Review
  4. Article
  5. Article
  6. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors at 9 institutions in 1 country.

Bruce MasonPrimary Palliative Care Research Group, Usher Institute, The University of Edinburgh, Edinburgh, UK.ORCID 0000-0002-9304-3362
Emma CarduffMarie Curie Hospice, Glasgow, UK.
Sheonad LaidlawThe Prince & Princess of Wales Hospice, Glasgow, UK.
Marilyn KendallPrimary Palliative Care Research Group, Usher Institute, The University of Edinburgh, Edinburgh, UK.
Scott A MurrayPrimary Palliative Care Research Group, Usher Institute, The University of Edinburgh, Edinburgh, UK.ORCID 0000-0002-3819-2912
Anne FinucanePrimary Palliative Care Research Group, Usher Institute, The University of Edinburgh, Edinburgh, UK.ORCID 0000-0002-3056-059X
Sebastien MoinePrimary Palliative Care Research Group, Usher Institute, The University of Edinburgh, Edinburgh, UK.
Joannes KerssensElectronic Data Research & Innovation Service (eDRIS), Public Health Scotland, Edinburgh, UK.
Andrew StoddartEdinburgh Clinical Trials Unit, The University of Edinburgh, Edinburgh, UK.
Sian TuckerNHS Lothian, Edinburgh, UK.
Erna HaraldsdottirSt Columba's Hospice and Queen Margaret University, Edinburgh, UK.
Sir Lewis RitchieUniversity of Aberdeen, Aberdeen, UK.
Marie FallonThe University of Edinburgh, Edinburgh, UK.
Jeremy KeenNHS Highland, Inverness, UK.
Stella MacphersonPrimary Palliative Care Research Group, Usher Institute, The University of Edinburgh, Edinburgh, UK.
Lorna MoussaMarie Curie, London, UK.
Kirsty BoydPrimary Palliative Care Research Group, Usher Institute, The University of Edinburgh, Edinburgh, UK.
University of Edinburgh · GBMarie Curie · GBMarie Curie Hospice · GBNHS Highland · GBNHS Lothian · GBPrincess of Wales Hospital · GBPublic Health Scotland · GBQueen Margaret University · GBUniversity of Aberdeen · GB

Funding

Chief Scientist OfficeMarie Curie MCRGS-07-16-37
6 · The paper itself

Abstract

backgroundUnscheduled care is used increasingly during the last year of life by people known to have significant palliative care needs.

aimTo document the frequency and patterns of use of unscheduled healthcare by people in their last year of life and understand the experiences and perspectives of patients, families and professionals about accessing unscheduled care out-of-hours.

designA mixed methods, multi-stage study integrating a retrospective cohort analysis of unscheduled healthcare service use in the last year of life for all people dying in Scotland in 2016 with qualitative data from three regions involving service users, bereaved carers and general practitioners.

settingThree contrasting Scottish Health Board regions and national datasets for the whole of Scotland.

resultsPeople who died in Scotland in 2016 (

conclusionStrengthening unscheduled care in the community, together with patient and public information about how to access these services could prevent hospital admissions of low benefit and enhance community support for people living with advanced illness.

Indexed as

After-Hours CarePalliative CareTerminal CareCaregiversHumansRetrospective StudiesScotlandadvance care planningAfter-hours careanticipatory care planningpalliative careterminal careunscheduled care

Identifiers

PMID35354412
PMCPMC8972951
OpenAlexW4220827335

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.