ArticleEthics & behavior2022
Ethical Perspectives in Sharing Digital Data for Public Health Surveillance Before and Shortly After the Onset of the COVID-19 Pandemic.
Article in Ethics & behavior, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review.Journal of medical Internet research · 2024Pooled it
- Characteristics and determinants of population acceptance of COVID-19 digital contact tracing: a systematic review.Acta bio-medica : Atenei Parmensis · 2021Pooled it
- Development of the digital mortality surveillance system: The Slovenian contribution to the global monitoring of mortality causes and patterns.Journal of global health · 2024Article
- An Evaluation of the User Experience and Privacy Concerns of Individuals Misusing Opioids Using a Location Tracking Mobile Application.Substance use & misuse · 2024Article
- Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries.Journal of medical Internet research · 2023Article
- Cryptocurrency as a new method for participant compensation in research.Health policy and technology · 2023Article
- Exploring patient perspectives on the secondary use of their personal health information: an interview study.BMC medical informatics and decision making · 2023Article
- Ethical principles for infodemiology and infoveillance studies concerning infodemic management on social media.Frontiers in public health · 2023Article
- Public attitudes towards sharing loyalty card data for academic health research: a qualitative study.BMC medical ethics · 2022Article
- Ethical Views on Sharing Digital Data for Public Health Surveillance: Analysis of Survey Data Among Patients.Frontiers in big data · 2022Article
- Digital Public Health Surveillance Tools for Alcohol Use and HIV Risk Behaviors.AIDS and behavior · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
Data from digital technologies are increasingly integrated in public health research. In April of 2020, we interviewed a subset of participants (N=25) who completed a survey approximately one month earlier (just prior to the declaration of the COVID-19 pandemic in the United States). Using the survey, we contacted and interviewed participants who had expressed their willingness or unwillingness to share digital data (e.g., from contact tracing apps) for use in public health. We followed a directed content analysis approach for the analysis of the interview data. Among participants who had reported being unwilling to share data, concerns about privacy, confidentiality, and the purpose of the research were cited. During the interviews, 76.9% of the participants who had previously indicated that they were unwilling to share their data, expressed willingness to share data in order to assist with COVID-19 prevention. Our results contribute to our understanding of people's perspectives on sharing personal data and of the way their perspectives can vary as a function of potential uses of their personal information (e.g., prevention of COVID-19).
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.