ArticleHealth expectations : an international journal of public participation in health care and health policy2022
Representation in participatory health care decision-making: Reflections on an Application-Oriented Model.
Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
7 citing papers in PubMed.
- Proceedings of the Global Health Focus Youth Conference 2025: The Role of Young People in Advancing Global Health Education, Research, and Leadership.Public health challenges · 2026Article
- Structural Compensation and Participatory Approaches: A Way to Improve Access to Health Care for Undocumented Immigrants? A Scoping Review.Journal of immigrant and minority health · 2026Article
- The role of representation in participatory settings of health research in Germany: protocol for a scoping review.Research involvement and engagement · 2025Review
- [Representation and representativeness in health councils: between formalization and participatory legitimacy].Cadernos de saude publica · 2025Article
- Establishing a standing patient advisory board in family practice research: A qualitative evaluation from patients' and researchers' perspectives.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Representation in participatory health care decision-making: Reflections on an Application-Oriented Model.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Representation in participatory healthcare decision-making.Health expectations : an international journal of public participation in health care and health policy · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
contextThe involvement of lay people in health care decision-making processes is now the norm in many countries. However, one important aspect of participation has not received sufficient attention in the past and remains underexplored: representation.
objectiveThis paper explores the question of how public participation efforts in collective health care decision-making processes can attempt to aim for legitimate representation so that those individuals or groups not present can be taken into account in the decisions affecting them. This paper argues that to make decisions that effectively address those affected, representation needs to be seen as a relevant part of any participatory setting. To support this argument, the paper outlines the concepts of participation and representation and transfers them to health care contexts.
resultsA conceptual reflection on responsiveness and the characteristics of representative actors in representative-participatory settings is introduced, which could provide actors planning to conduct participatory health care projects with tools to reflect on the merits and possible flaws of participatory constellations. PATIENT OR PUBLIC CONTRIBUTION: The paper contributes to improving public participation in health care decision-making.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.