ArticleBMJ open2022
Cancer in deceased adults with intellectual disabilities: English population-based study using linked data from three sources.
Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 4 of them syntheses that pooled it.
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Who cites it
26 citing papers in PubMed, 4 syntheses or guidelines pooled it, 44 citations in OpenAlex.
- Cancer prevention and screening for people with intellectual disabilities in Europe: a systematic review and recommendations for policy and practice.Frontiers in public health · 2026Pooled it
- Cancer in adults with intellectual disability: a systematic review of prevalence and incidence.BMC cancer · 2025Pooled it
- A literature review of cancer diagnostic tests and treatments in adults with intellectual disability.HRB open research · 2025Pooled it
- Cancer risks related to intellectual disabilities: A systematic review.Cancer medicine · 2024Pooled it
- Cancer screening learning for adults with intellectual disability.Canadian journal of public health = Revue canadienne de sante publique · 2026Trial
- Cancer screening in people with intellectual disability: a scoping review of participation, barriers, facilitators, and improvement strategies within the EUCanScreen initiative.International journal for equity in health · 2026Article
- Bowel cancer care in individuals with an intellectual disability: a population-based cohort study of symptoms, diagnostic pathways, treatment and survival.BMC medicine · 2026Article
- The importance of cancer prevention policies to inform and guide preventative and screening measures for people with intellectual disabilities: The COST project "Cancer- Understanding Prevention in Intellectual Disabilities".Journal of intellectual disabilities : JOID · 2026Article
- Age-Specific Diagnostic Panorama Among People With Intellectual Disabilities in Comparison With the General Population: A Longitudinal Register Study (IDcare).Journal of intellectual disability research : JIDR · 2026Article
- Navigating cancer treatment in people with intellectual disability: a qualitative study of professionals' and family members' perspectives.BMC cancer · 2026Article
- Exploring Inclusion in Austria's Breast Cancer Screening:A Dual-Perspective Study of Women with Intellectual Disabilities and Their Caregivers.International journal of environmental research and public health · 2026Article
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- Cancer diagnoses, referrals, and survival in people with a learning disability in the UK: a population-based, matched cohort study.The Lancet regional health. Europe · 2026Article
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- Towards Inclusive Colorectal Cancer Screening: Experiences and Needs of Adults With Intellectual Disabilities.Cancer medicine · 2025Article
- Cancer prevalence and care disparities among individuals with intellectual disabilities: a cross-sectional pan-cancer analysis.ESMO real world data and digital oncology · 2025Article
- Intellectual and Developmental Disabilities and Cancer Symptom Severity: A Matched Retrospective Cohort Study.Psycho-oncology · 2025Article
- Cancer incidence and diagnostic characteristics in people with intellectual disabilities in the Netherlands: a national registry-based cohort study.BMJ oncology · 2025Article
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Corrections and comments
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Authors and funding
6 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo improve our understanding of cancer in adults with intellectual disabilities.
designPopulation-based study using linked data about deceased adults from the Learning (Intellectual) Disabilities Mortality Review (LeDeR) programme, the national cancer registry and NHS Digital.
settingEngland.
participants1096 adults with intellectual disabilities identified by the LeDeR programme who died between 1 January 2017 and 31 December 2019. OUTCOME MEASURE: Any form of cancer listed as a long-term health condition by a LeDeR reviewer or 10th edition of the International Classification of Diseases codes C00-D49 included on Parts I or II of the Medical Certificate of Cause of Death.
resultsIn decedents with intellectual disabilities and cancer, more than a third (35%; n=162) had cancer diagnosed via emergency presentations. Almost half (45%; n=228) of cancers were at stage IV when diagnosed. More than a third (36%; n=309) of underlying causes of deaths were of cancers of the digestive system; almost half of these (48%; n=147) were cancer of the colon, rectum or anus. Of those who died with colorectal cancer, 43% were below the age threshold for colorectal screening.
conclusionsIn decedents with intellectual disabilities, symptoms suggestive of cancer had tended to be identified most frequently as an emergency and at a late stage. There is a need for greater awareness of symptoms of cancer in this population, a lower threshold for referral by General Practitioners (GPs), accelerated access to diagnosis and treatment and consideration paid to lowering the age for colorectal screening.
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