ArticleBJPsych open2022
The experiential perspectives of siblings and partners caring for a loved one with an eating disorder in the UK.
Article in BJPsych open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.
- Family member's perceived impact of anorexia nervosa and bulimia nervosa on family dynamics: a qualitative systematic review and meta-synthesis.Cadernos de saude publica · 2026Pooled it
- Care approaches for people with longstanding eating disorders: a lived experience perspective on the need for recovery-fostering care.Journal of eating disorders · 2026Article
- Adolescent, Parent, and Healthcare Professional Experiences of a Virtual Day Treatment Program for Eating Disorders During the Transition to Post-Pandemic Times.Clinical child psychology and psychiatry · 2026Article
- Mental health interventions for carers of individuals with eating disorders: a systematic review of randomized controlled trials assessing efficacy on anxiety and depressive symptoms.Journal of eating disorders · 2026Review
- Sibling Involvement and Documentation in Pediatric Eating Disorder Care.The International journal of eating disorders · 2026Article
- A Novel Approach to the Involvement of Loved Ones in the Treatment of Individuals with Eating Disorders: The Family Integration Model.Behavioral sciences (Basel, Switzerland) · 2026Article
- "We're on the journey now together": a qualitative examination of "close others'" perspectives on barriers and facilitators to help-seeking for eating disorders.Journal of eating disorders · 2026Article
- How do male partners experience the pre- and postpartum period depending on maternal anorexia nervosa? Findings from a qualitative interview study.Eating and weight disorders : EWD · 2026Article
- Mind the gap: parental perspectives on mental health service transitions for young adults with anorexia nervosa.Journal of eating disorders · 2026Article
- "Always, always have hope:" persons with lived experience, carers and health professionals' experiences before and after discharge from hospital for an eating disorder.Journal of eating disorders · 2026Article
- Perceived carer skills and psychological distress in fathers and mothers of adults with anorexia nervosa: a longitudinal study.Journal of eating disorders · 2025Article
- The experience of siblings attending multi-family therapy for adolescent eating disorders: a mixed-methods study.Journal of eating disorders · 2025Article
- Informal caregiver uncertainty: exploring the presence of uncertainty in eating disorder Reddit posts.Journal of eating disorders · 2025Article
- "It's like a car that doesn't like gasoline" - a qualitative study of siblings' understanding of anorexia nervosa in childhood: perspectives from siblings and parents.Journal of eating disorders · 2025Article
- Parents' experiences of caring for a child with an eating disorder: the impact of financial challenges.Journal of eating disorders · 2025Article
- What is day programme treatment for anorexia nervosa really like? Part 2: A reflexive thematic analysis of feedback from caregivers.Journal of eating disorders · 2025Article
- Short-term impact of BREF-ED, an early, single-family psychoeducational programme for caregivers of individuals with eating disorders: A retrospective pilot study.European psychiatry : the journal of the Association of European Psychiatrists · 2025Article
- A family navigator improves post-discharge treatment adherence among adolescents with anorexia nervosa: a pilot study.Journal of eating disorders · 2025Article
- Improving eating disorder care for underserved groups: a lived experience and quality improvement perspective.Journal of eating disorders · 2025Article
- Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national survey.BJPsych open · 2025Article
Corrections and comments
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Authors and funding
7 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCaring for a loved one with an eating disorder typically comes with a multitude of challenges, yet siblings and partners are often overlooked. It is important to understand if current clinical guidance for supporting carers are effective and being utilised for these groups, to help meet their needs.
aimsTo identify the experiential perspectives of siblings and partners of a loved one with an eating disorder compared with guidance for improving the adequacy of support provided to carers published by Beat and Academy for Eating Disorders.
methodThree online focus groups were held for ten siblings and five partners from across the UK (12 females and three males). Carers had experience of caring for a loved one with anorexia nervosa (13 carers) or bulimia nervosa (two carers), across a range of therapeutic settings. Focus group transcriptions were analysed with thematic analysis.
resultsFour key themes were identified: (a) role-specific needs, (b) challenges encountered by siblings and partners, (c) generic needs and helpful strategies or approaches, and (d) accounts of service provision and family support.
conclusionsOverall, the majority of experiences reported by siblings and partners did not meet the published guidance. Consequently, clinical practice recommendations were identified for services, alongside the charity sector, to take a proactive approach in detecting difficulties, providing skills training and emotional/practical support, adapting/tailoring peer support groups and supporting online facilitation. Our findings part-informed the design of our national online survey on loved ones' experiences of care in eating disorders.
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