Evidence map›Paper›PMID 35321599›Full record

ArticleAging & mental health2023

The associations between unmet needs with protective factors, risk factors and outcomes among care partners of community-dwelling persons living with dementia.

Inga Margret Antonsdottir, Jeannie-Marie Leoutsakos, Danetta Sloan, Morgan Spliedt, Deirdre Johnston, Melissa Reuland, Constantine Lyketsos, Halima Amjad, Quincy M Samus

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Aging & mental health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.5field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 10 citations in OpenAlex.

  1. Trial
  2. Article
  3. Barriers to accessing and receiving mental health care for paid and unpaid carers of older adults.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  4. Care Need Combinations for Dementia Patients with Multiple Chronic Diseases.Psychology research and behavior management · 2023
    Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 2 institutions in 1 country.

Inga Margret AntonsdottirJohns Hopkins School of Nursing, Baltimore, MD, USA.
Jeannie-Marie LeoutsakosDepartment of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine, Baltimore, MD, USA.
Danetta SloanDepartment of Health Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Morgan SpliedtDepartment of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine, Baltimore, MD, USA.
Deirdre JohnstonDepartment of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine, Baltimore, MD, USA.
Melissa ReulandDepartment of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine, Baltimore, MD, USA.
Constantine LyketsosDepartment of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine, Baltimore, MD, USA.
Halima AmjadDepartment of Medicine, Johns Hopkins School of Medicine, Baltimore, MD, USA.
Quincy M SamusDepartment of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine, Baltimore, MD, USA.
Johns Hopkins University · USJohns Hopkins Medicine · US

Funding

Research Education ComponentP30AG066507 · NIA · JOHNS HOPKINS UNIVERSITY · PI MARILYN S. ALBERT · 2020 to 2026
$29.3M
Remote Data Enclave Core (RDEC)P30AG066587 · NIA · JOHNS HOPKINS UNIVERSITY · PI DANIEL E POLSKY, Jennifer L. Wolff · 2020 to 2026
$6.7M
Using Mixed Methods to examine disparitites in dementia-related needs and intervention responses to MIND at Home care coordination program among African American persons with dementia and their caregR01AG046274 · NIA · JOHNS HOPKINS UNIVERSITY · PI SAMUS, QUINCY MILES · 2014 to 2018
$3.6M
Improving Post-Diagnosis Dementia Care in Primary CareK23AG064036 · NIA · JOHNS HOPKINS UNIVERSITY · PI AMJAD, HALIMA · 2020 to 2024
$932k
NIA NIH HHS K23 AG064036NIA NIH HHS P30 AG066507NIA NIH HHS P30 AG066587NIA NIH HHS R01 AG046274
6 · The paper itself

Abstract

objectivesDescribe the prevalence and types of unmet needs among community-dwelling dementia care partners (CPs) and determine associations between unmet needs with protective factors, risk factors and outcomes.

methodA cross-sectional analysis of 638 racially and cognitively diverse community-dwelling persons living with dementia (PLWD) and their CPs participating in a comprehensive in-home assessment of dementia-related needs. Unmet CP needs (19 items, 6 domains) were rated by a clinician using the Johns Hopkins Dementia Care Needs Assessment (JHDCNA). Multivariate linear regression models were used to examine associations between total percent unmet CP needs with demographic, protective and risk factors.

resultsNearly all CPs had at least one unmet need (99.53%), with a mean of 5.7 (±2.6). The most common domains with ≥1 unmet need were memory disorder education, care skills and knowledge of resources (98%), legal issues/concerns (73.8%), CP mental health (44.6%) and access to informal support (42.7%). Adjusted multivariate models suggest the strongest consistent predictive factors relate to informal emotional support, CP physical health, use or difficulty getting formal services/supports (both for CPs and PLWD), and CP time spent with PLWD. Greater levels of unmet needs were associated with worse PLWD outcomes and CP outcomes, after adjusting for demographics.

conclusionsCPs have high rates of diverse, but modifiable unmet needs. Data suggest optimal approaches to dementia care should take a family-centered home-based approach that includes routine CP needs assessment, offer targeted interventions that include both traditional medical supports as well as strategies to increase and leverage informal social networks, and ones that can bridge and coordinate medical with non-medical supports. These findings can be used to inform new approaches to support CPs, improve PLWD and CP outcomes, and target groups most at risk for inequities.

Indexed as

DementiaIndependent LivingCaregiversCross-Sectional StudiesHealth Services Needs and DemandHumansProtective FactorsAlzheimer’s diseasecaregivingcare partnershome and community-based supportinterventionunmet needs

Identifiers

PMID35321599
PMCPMC9508284
OpenAlexW4220823982

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.