SynthesisBMJ supportive & palliative care2023
Decision-making in palliative care: patient and family caregiver concordance and discordance-systematic review and narrative synthesis.
Synthesis in BMJ supportive & palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
39 citing papers in PubMed, 1 synthesis or guideline pooled it, 75 citations in OpenAlex.
- Caregiving and Shared Decision Making in Breast and Prostate Cancer Patients: A Systematic Review.Current oncology (Toronto, Ont.) · 2023Pooled it
- Prognostic disclosure, end-of-life communication, and social support associated with distinct dyadic death-preparedness states among cancer dyads.The oncologist · 2026Article
- Factors influencing palliative care decision-making participation among elderly patients in the terminal stage: a cross-sectional study.BMC palliative care · 2026Article
- Ensuring a good death: Priorities and concerns of healthcare personnel across healthcare settings.Palliative & supportive care · 2026Article
- Unclear boundaries: Family caregivers' invisible role in home-based palliative care in Norway: an exploratory analysis of secondary data from two previous studies.International journal of nursing studies advances · 2026Article
- General practitioners and general practitioner registrars' experiences and learning from caring for dying patients: a scoping review.BMJ open · 2026Article
- Spiritual intelligence and family caregivers' self-efficacy in end-of-life: a cross-sectional study.BMC palliative care · 2026Article
- Continuous sedation in adolescent and young adult cancer patients under home-based end-of-life care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Observational
- Nursing interventions for patients in last days of life and their family caregivers at home: a protocol for a mixed methods systematic review.Systematic reviews · 2026Article
- Experiences of bereaved family caregivers of patients with Alzheimer's disease regarding do-not-resuscitate orders: A qualitative study.Palliative & supportive care · 2026Article
- Unravelling the complexities of end-of-life critical care interventions: what drives medico-legal complaints to physicians?BMC health services research · 2026Article
- Beyond the Diagnosis: A Comprehensive Case Report on Duchenne Muscular Dystrophy.Case reports in critical care · 2026Article
- Discordance in decision-making between patients with advanced cancer and caregivers from the perspective of healthcare professionals in specialist palliative care: A focus group study.Palliative & supportive care · 2025Article
- Choice, struggle, and resilience: the experience of pre-loss grief among Chinese family caregivers of cancer patients.BMC palliative care · 2025Article
- Changes in End-of-Life Quality in Patients With Terminal Cancer During Their Last 6 Months of Life: A Longitudinal Study.The journal of nursing research : JNR · 2025Article
- Choices and challenges in end-of-life care and decision-making: a nationwide cross-sectional study in Bangladesh.BMC palliative care · 2025Article
- Healthcare Professionals' Perspective on Supporting Patients and Family Caregivers in End-Of-Life Care Decision-Making: A Qualitative Study in Specialist Palliative Care.The American journal of hospice & palliative care · 2025Article
- Article
- Patient-caregiver concordance on death preparedness over Taiwanese cancer patients' last 6 months.The oncologist · 2025Article
- Palliative Care and Advanced Cardiovascular Disease in Adults: Not Just End-of-Life Care: A Scientific Statement From the American Heart Association.Circulation · 2025Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
14 authors at 9 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDecision-making in palliative care usually involves both patients and family caregivers. However, how concordance and discordance in decision-making manifest and function between patients and family caregivers in palliative care is not well understood.
objectivesTo identify key factors and/or processes which underpin concordance and/or discordance between patients and family caregivers with respect to their preferences for and decisions about palliative care; and ascertain how patients and family caregivers manage discordance in decision-making in palliative care.
methodsA systematic review and narrative synthesis of original studies published in full between January 2000 and June 2021 was conducted using the following databases: Embase; Medline; CINAHL; AMED; Web of Science; PsycINFO; PsycARTICLES; and Social Sciences Full Text.
resultsAfter full-text review, 39 studies were included in the synthesis. Studies focused primarily on end-of-life care and on patient and family caregiver preferences for patient care. We found that discordance between patients and family caregivers in palliative care can manifest in relational conflict and can result from a lack of awareness of and communication about each other's preferences for care. Patients' advancing illness and impending death together with open dialogue about future care including advance care planning can foster consensus between patients and family caregivers.
conclusionsPatients and family caregivers in palliative care can accommodate each other's preferences for care. Further research is needed to fully understand how patients and family caregivers move towards consensus in the context of advancing illness.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.