Evidence map›Paper›PMID 35310824›Full record

ArticleClinical practice in pediatric psychology2021

Fertility Discussions: Perspectives of Adolescents and Young Adults With Differences of Sex Development.

Jaclyn L Papadakis, Jonathan L Poquiz, Cindy L Buchanan, Yee-Ming Chan, Canice E Crerand, Jennifer Hansen-Moore, Hillary M Kapa, Leena Nahata, Keeley J Pratt, Amy C Tishelman and 1 more

Open access · greenAbstract read
In one paragraph

Article in Clinical practice in pediatric psychology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
0.5field-weighted citation impact, top 36% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 16 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 6 institutions in 1 country.

Jaclyn L PapadakisNorthwestern University Feinberg School of Medicine and Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, Illinois.ORCID 0000-0002-8556-2509
Jonathan L PoquizAnn & Robert H. Lurie Children's Hospital of Chicago, Chicago, Illinois.ORCID 0000-0002-7736-5433
Cindy L BuchananChildren's Hospital Colorado, Aurora, Colorado, and University of Colorado Anschutz Medical Campus.
Yee-Ming ChanBoston Children's Hospital, Boston, Massachusetts, and Harvard Medical School.ORCID 0000-0003-0554-8502
Canice E CrerandThe Ohio State University and Nationwide Children's Hospital, Columbus, Ohio.ORCID 0000-0003-0040-6396
Jennifer Hansen-MooreThe Ohio State University and Nationwide Children's Hospital, Columbus, Ohio.
Hillary M KapaNationwide Children's Hospital, Columbus, Ohio.
Leena NahataThe Ohio State University and Nationwide Children's Hospital, Columbus, Ohio.
Keeley J PrattThe Ohio State University.
Amy C TishelmanBoston Children's Hospital, Boston, Massachusetts, and Harvard Medical School.ORCID 0000-0002-1467-1732
Diane ChenNorthwestern University Feinberg School of Medicine and Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, Illinois.ORCID 0000-0002-7302-9248
Nationwide Children's Hospital · USBoston Children's Hospital · USNorthwestern University · USChildren's Hospital Colorado · USLurie Children's Hospital · USThe Ohio State University · US

Funding

Factors Influencing Psychosocial Outcomes in Disorders of Sex DevelopmentR21HD089526 · NICHD · RESEARCH INST NATIONWIDE CHILDREN'S HOSP · PI CRERAND, CANICE ELLEN, TISHELMAN, AMY C · 2016 to 2017
$458k
NICHD NIH HHS R21 HD089526
6 · The paper itself

Abstract

Objective: Fertility-related health care and decision-making needs for youth with differences of sex development (DSD) are complex and vary by condition and the values and preferences of each individual and their partner and/or family. Discussing fertility implications can be a challenging aspect of clinician and family communication about a DSD diagnosis. This qualitative study assesses fertility-related communication experiences of adolescents and young adults (AYA) with DSD. Method: Participants included 97 AYA with DSD ages 12-26 years ( Results: Two major themes, each with subthemes, were identified: (1) understanding of fertility related to (1a) one's own fertility status, (1b) reproductive and parenting options, and (1c) emotional reactions to one's own fertility status and (2) conversations about fertility related to (2a) reflections on conversations, (2b) barriers, and (2c) advice. Conclusions: AYA perspectives in this study provide important information about how youth with DSD learn about their fertility status, the impact their fertility status has on them, and the fertility-related conversations they have with their providers and families. Specific recommendations for providers and parents or caregivers include the following: inform youth of their fertility status as early as possible; be direct but patient in delivering information; begin by giving basic information and provide more detail as the conversation unfolds; revisit the conversation over time to allow for further discussion or information-seeking; offer additional information or resources, including behavioral health resources.

Indexed as

AYADSDfertility counselingintersex conditionsqualitative

Identifiers

PMID35310824
PMCPMC8932642
OpenAlexW3107145757

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.